Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,939 members•6,968 posts

All posts for March 2022

A change of plan for testing the vulnerable - Government Lateral Flow tests instead of PCR tests

The other day I received a box of Lateral Flow tests in the post, quite unexpectedly. I have now received an email which explains it. We no longer have to...

The other day I received a box of Lateral Flow tests in the post, quite unexpect...

May7

•3 years ago

9 Replies

A vasculitis sufferer

I wondered how others are coping with pandemic and the precautions you are taking

I wondered how others are coping with pandemic and the precautions you are taki...

Westley

•3 years ago

19 Replies

Thank you - Jay Introduction

Thank you for the replies to my introduction post. It is good to know that there are people out there to share my concerns with. I'm realising that I do need...

Thank you for the replies to my introduction post. It is good to know that there...

Kanjee18

•3 years ago

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Introduction: I'm new here

Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney...

Hi my name is Jay and I just wanted to introduce myself. My husband has vasculit...

Kanjee18

•3 years ago

15 Replies

RAIRDA survey - Survey of people with rheumatic conditions about fourth vaccination dose

For those with an interest or would like to take part in this survey from RAIRDA...

John_Mills

Volunteer•3 years ago

5 Replies

Spring Booster arrangements for Scottish patients

Just a heads up to fellow Scots due a Spring Booster. We will be contacted re appointments, most likely another blue appointment letter in the post. For the...

Just a heads up to fellow Scots due a Spring Booster. We will be contacted re ap...

vivdunstan

Volunteer•3 years ago

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Fith Covid Jab

Dear All, having 'heard', on The News, about a Fith Covid Jab- for Vulnerable People- I spoke to my Doctors. The Recepionist didn't seem to 'Know' much, about...

Dear All, having 'heard', on The News, about a Fith Covid Jab- for Vulnerable Pe...

AndrewT

•3 years ago

2 Replies

Rituximab and Covid Infection - Anybody Out There?

Hi Everybody. As the question says have you experienced being infected while on Rituximab. Please don’t think it’s part of my plan, it isn’t but I ask the...

Hi Everybody. As the question says have you experienced being infected while on ...

Investigator1

•3 years ago

30 Replies

Survey from Rare Barometer

Rare Barometer has launched a new survey, if you are interested in participating. Share your experience of seeking a diagnosis for your rare disease! This...

Rare Barometer has launched a new survey, if you are interested in participating...

zoe69

Administrator•3 years ago

9 Replies

Lateral flow tests

Hi has anyone heard how lateral flow tests will be distributed to those that qualify after April 1st ? It’s been very quiet from government recently.

Hi has anyone heard how lateral flow tests will be distributed to those that qua...

Main1234

•3 years ago

11 Replies

A bit 'Off Topic', a Laugh At My Expence....

Dear All, A couple of Months ago I bought, or technically was given, a new Electric Reclining Chair- I was Sixty in February (poor old Crock!). It has been...

Dear All, A couple of Months ago I bought, or technically was given, a new Elect...

AndrewT

•3 years ago

7 Replies

MELODY Study, Imperial College - Covid 19 in-home antibody testing research study

I received a letter last month (February) from Imperial College/NHS for the MELODY Study saying, "We have chosen your name at random from a list of people who...

I received a letter last month (February) from Imperial College/NHS for the MELO...

May7

•3 years ago

18 Replies

Anxious and scared

Hi , diagnosed GPA 2000, several flare ups. Caught covid Nov 2021 2 hospital admissions with severe breathlessness. 2 trial with 2 infusions and O2. Now have...

Hi , diagnosed GPA 2000, several flare ups. Caught covid Nov 2021 2 hospital ad...

Fleen

•3 years ago

4 Replies

Protienase-3. pANCA: Positive, huh?

Hi friends, thank you for any and all help. I'm seeing a specialist about my kidney issues, that being low eGRF score of around 60. I had the appointment the...

Hi friends, thank you for any and all help. I'm seeing a specialist about my kid...

spencerk

•3 years ago

27 Replies

Take action against ending free COVID-19 testing kits!

Join us in calling on the UK Government to continue free tests for people who are eligible for COVID-19 treatments, their families and close contacts. The UK...

Join us in calling on the UK Government to continue free tests for people who ar...

John_Mills

Volunteer•3 years ago

4 Replies

I'm a bit Scared, to be honest😥

Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most...

Dear All, Several of my neighbours, we only have eighteen flats, have had/ curre...

AndrewT

•3 years ago

6 Replies

Second booster confirmed for immunosuppressed Scots

Here is the Scottish government page confirming that Scots over 75 or immunosuppressed should be getting a second booster. This is to happen 24 weeks at least...

Here is the Scottish government page confirming that Scots over 75 or immunosupp...

vivdunstan

Volunteer•3 years ago

2 Replies

New rash

Hi, This is a new rash which has appeared this morning, it’s a bit familiar to me I think…. Is it familiar to anyone else ? Any ideas? I’ve been diagnosed...

Hi, This is a new rash which has appeared this morning, it’s a bit familiar to m...

Hidden

•3 years ago

9 Replies

Understanding blood test results

My daughters blood test result Just wondering if anyone has any idea what this mean

My daughters blood test result Just wondering if anyone has any idea what this ...

Sarah-38

•3 years ago

6 Replies

RAISE study - an opportunity to raise your voice

Are you a person who has systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as dermatomyositis or polymyositis), Scleroderma or...

Are you a person who has systemic vasculitis, systemic lupus erythematosus, infl...

zoe69

Administrator•3 years ago

2 Replies

4th jab

Hi all, I'm based in Ireland and have received a notification for 4th jab. I've got GPA - on 2 X 500 Mycolat, 5mg pred and the rest. First 2 jabs were AZ and...

Hi all, I'm based in Ireland and have received a notification for 4th jab. I've ...

Corcaigh

•3 years ago

14 Replies

Vasculitis patients living in London? Do you think you could benefit from a support group, meeting people who face similar challenges

https://www.vasculitis.org.uk/events/vasculitis-support-group-london

John_Mills

Volunteer•3 years ago

6 Replies

EGPA question

I was diagnosed with EGPA a year and a half ago. Now a lung CT scan shows a lung nodule and I will need a biopsy. I assume this nodule is a manifestation of...

I was diagnosed with EGPA a year and a half ago. Now a lung CT scan shows a lung...

sophierenee114

•3 years ago

12 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2022

A change of plan for testing the vulnerable - Government Lateral Flow tests instead of PCR tests

A vasculitis sufferer

Thank you - Jay Introduction

Introduction: I'm new here

RAIRDA survey - Survey of people with rheumatic conditions about fourth vaccination dose

Spring Booster arrangements for Scottish patients

Fith Covid Jab

Rituximab and Covid Infection - Anybody Out There?

Survey from Rare Barometer

Lateral flow tests

A bit 'Off Topic', a Laugh At My Expence....

MELODY Study, Imperial College - Covid 19 in-home antibody testing research study

Anxious and scared

Protienase-3. pANCA: Positive, huh?

Take action against ending free COVID-19 testing kits!

I'm a bit Scared, to be honest😥

Second booster confirmed for immunosuppressed Scots

New rash

Understanding blood test results

RAISE study - an opportunity to raise your voice

4th jab

Vasculitis patients living in London? Do you think you could benefit from a support group, meeting people who face similar challenges

EGPA question

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