Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for January 2020

Will I every feel well again?

Hi I was diagnosed with EGPA sept 2017 after 7 days in the Brompton. I am ANCA neg too - as you say this does puzzle them... I have spent the 1st 18months on...

Hi I was diagnosed with EGPA sept 2017 after 7 days in the Brompton. I am ANCA n...

•5 years ago

Four months off Prednisone still ocasional bad bloating normal ?

I’ve been off prednisone for four months now. I was one prednisone for a year and four months. Started with 30 mg 3 months 2 months 20 and the rest 10mg...

I’ve been off prednisone for four months now. I was one prednisone for a year an...

•5 years ago

Immunology

Hi. Has anyone been treated by or seen by an immunologist? I have only seen Nephrologist and once recently (upon my request) a rheumatologist. Why does...

Hi. Has anyone been treated by or seen by an immunologist? I have only seen Neph...

•5 years ago

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Bladder irritation after cyclophosphamide.

I was diagnosed with GPA vasculitis in 2016 and given two doses of cyclophosphamide.I was given Mesna tablets at the same time to protect the bladder as this...

I was diagnosed with GPA vasculitis in 2016 and given two doses of cyclophospham...

•5 years ago

Irritated throat.

Does anyone else have a very sensitive throat. I have coughing fits when eating and talking and it always feels as if I have phlegm wrapped around my vocal...

Does anyone else have a very sensitive throat. I have coughing fits when eating ...

•5 years ago

Mycophenilate

I've been taking mycophenilate for 3 months increasing my dose.. I feel horrendous migraine for days on end, pain all over my body, sick, not sleeping and...

I've been taking mycophenilate for 3 months increasing my dose.. I feel horrendo...

•5 years ago

Azathioprine tapering

Hi, I've been on Azathioprine for nearly two years now after chemo infusions for my anti gbm vasculitus. My consultant is starting to reduce my doses...

Hi, I've been on Azathioprine for nearly two years now after chemo infusions for...

•5 years ago

Azathrioprine

Hi All Any advice on when to restart Azathrioprine after Having Shingles? I'm waiting for an appointment with Rhumy but any advice would be appreciated. I...

Hi All Any advice on when to restart Azathrioprine after Having Shingles? I'm w...

sorefeetsoldier

•5 years ago

VERY Helpful Insurance Company

Dear Everyone, I recently booked two Holidays, with Re-Vitalise (formally the Winged Fellowship Trust- founded by Joan Brander MBE. 'Holidays For Dis-abled...

Dear Everyone, I recently booked two Holidays, with Re-Vitalise (formally the Wi...

•5 years ago

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Bechet's disease?

This is going to be long so bear with me. I was diagnosed with crohns disease in 2017 however in December this was proved to be incorrect. In the past year I...

This is going to be long so bear with me. I was diagnosed with crohns disease in...

•5 years ago

New Mattress

Dear Vasculitis Friends, I haven't 'Posted', on here, for a while...So, first of all Happy New Year 2020. Secondly, how are you all? 'Well'?, well as well as...

Dear Vasculitis Friends, I haven't 'Posted', on here, for a while...So, first of...

•5 years ago

GPA heart disease

Anyone with GPA had heart involvement?

Anyone with GPA had heart involvement?

•5 years ago

Relocating to Dorset

Hi all, Here’s to a better 2020 for us all! I am considering relocating to Dorset and my husband is worried about my ongoing treatment for MPA (currently on...

Hi all, Here’s to a better 2020 for us all! I am considering relocating to Dorse...

•5 years ago

GPA and chest pain

Hi I have GPA. I have been referred to cardiology for chest pain. I was wondering if anyone had GPA associated chest pain?

Hi I have GPA. I have been referred to cardiology for chest pain. I was wonderin...

•5 years ago

Kidney Transplant /Dialysis

Greetings i have had MPA for about nine years now and have been a member of the group most of that time.With the help of my excellent doctors I have managed...

Greetings i have had MPA for about nine years now and have been a member of the...

•5 years ago

Astaxanthin for Sjögren’s Syndrome and Lupus

I have read some very encouraging articles about this strong antioxidant supplement. Low dosage is used for eye health but higher dosage (4 mg & up) used for...

I have read some very encouraging articles about this strong antioxidant supplem...

•5 years ago

FeelingGreatNot in diagnostic limboland-advice please!

I’ve asked for advice here before about a possible EGPA diagnosis (eosinophilia, lung infiltrates(eosinophillic pneumonia), asthma, severe sinus polyposis,...

I’ve asked for advice here before about a possible EGPA diagnosis (eosinophilia,...

FeelingGreatNot

•5 years ago

Can't take prednisolone due to diaorhea and sickness.

How long can I go without taking prednisolone12.5mg? I have had diaorhea and sickness since new year.I took my dose on1st but none since as I couldn't stomach...

How long can I go without taking prednisolone12.5mg? I have had diaorhea and sic...

•5 years ago

A bit about me

I'm newly registered here and wanted to say hello to everyone. I was diagnosed with GPA in August 2019 after a good few years of various problems. It's...

I'm newly registered here and wanted to say hello to everyone. I was diagnosed ...

•5 years ago

Happy New Year

Hope it is a good one for everyone 😊

Hope it is a good one for everyone 😊

Moderator•5 years ago