Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,777 members • 6,750 posts

All posts for September 2015

Post op

Hi everyone just to let you know I have had my mastectomy etc. On Monday and came home on Tuesday. I had wonderful care . I was taken straight to Intensive...

Hi everyone just to let you know I have had my mastectomy etc. On Monday and cam...

Fennahj7115

•9 years ago

5 Replies

Leeds NHS Trust - Long Term Condition Management Workshops

This was tweeted by Leeds NHS Trust this morning - it gives dates for self management and support for those living with a long term health condition . Just...

This was tweeted by Leeds NHS Trust this morning - it gives dates for self manag...

Suzym2u

Moderator•9 years ago

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Sinus problems

Hi all. I have a diagnosis of SLE/UCTD and am also beginning to experience some Vasculitic type problems. I have just had a CT of my sinuses to see if these...

Hi all. I have a diagnosis of SLE/UCTD and am also beginning to experience some ...

Fennella02

•9 years ago

3 Replies

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Alternative to Methotrexate?

Hi all, My hubby has Rheumatoid Vasculitis and is on lots of meds, including Methotrexate 15mg (just come down from 25mg). He hates this weekly injection,...

Hi all, My hubby has Rheumatoid Vasculitis and is on lots of meds, including Me...

PhoebeO

•9 years ago

8 Replies

Churg-Strauss and treatment

I have just been re-diagnosed with CSS having been treated specifically for GPA (Wegeners) for nearly 3 years, although I think I may have some cross over. I...

I have just been re-diagnosed with CSS having been treated specifically for GPA ...

Maudy1

•9 years ago

16 Replies

Vasculities MPA

I'm so grateful for this site b/c I have so many questions about this disease. My fiance was diagnosed about 18 months ago, so we're still learning about...

I'm so grateful for this site b/c I have so many questions about this disease. ...

Christina1960

•9 years ago

14 Replies

Christmas Fair in the Peak District for Vasculitis UK - Date for your Diary

Once again the Lathkil Hotel http://www.lathkil.co.uk/ in the beautiful Peak District http://www.peakdistrict.gov.uk/ will be showcasing some of the best local...

Once again the Lathkil Hotel http://www.lathkil.co.uk/ in the beautiful Peak Dis...

Suzym2u

Moderator•9 years ago

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Non Systemic Vasculitic Neuropathy, mononeuritis multiplex.

Hi, I suffer with the above. Anybody else in the group with this? Anyone in East Anglia ?

Hi, I suffer with the above. Anybody else in the group with this? Anyone in East...

stevoj

•9 years ago

11 Replies

Vasculitis Research Questionnaire - Part Two

There will be 350 follow on questionnaires, from the Oxford research study, which was started about 4 months ago, going out tomorrow, so if you completed and...

There will be 350 follow on questionnaires, from the Oxford research study, whic...

Suzym2u

Moderator•9 years ago

2 Replies

Autoimmune diseases, asbestos, silica, dust...

http://www.isu.edu/magazine/fall10/asbestos-exposure.shtml

wooddustaffected

•9 years ago

1 Reply

Total knee replacement

Posting from hospital day 2 after op, severe pain and heavy bruising,current meds 20 mg pred,25mg mtx,200mg tramodal am/ pm,folic onezrapole etc. Supplemented...

Posting from hospital day 2 after op, severe pain and heavy bruising,current med...

Nick_H

•9 years ago

3 Replies

My last analysis.

HI it's me again. Today i handed the result of my last analysis, the analysis that I made a month ago, had gone negative lupus anticoagulant, now I think not....

HI it's me again. Today i handed the result of my last analysis, the analysis th...

clapa80

•9 years ago

1 Reply

For how long wg patients have to get medication and infusion?Does anyone get off from wg medication?

Just curious to know gor how long wg patients take madications and infusions?Does anyone get off from medications and live normal life?

Just curious to know gor how long wg patients take madications and infusions?Doe...

monikagoyal

•9 years ago

12 Replies

Vasculitis East Midlands informal lunch and get together - October 3rd

The EMVSG, would like to invite those diagnosed with Vasculitis, who are in the Derbyshire/Nottingham area, to an informal lunch and chat. Family and Friends...

The EMVSG, would like to invite those diagnosed with Vasculitis, who are in the ...

Suzym2u

Moderator•9 years ago

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Progress

After intensive tests, consultations and an iron infusion I have decided to go ahead and risk having a mastectomy with removal of some lymph nodes. The...

After intensive tests, consultations and an iron infusion I have decided to go a...

Fennahj7115

•9 years ago

3 Replies

Wegener's granulomatosis

My wife has Wegener's granulomatosis can any one help find the best consultant for this illness in the Derby/Sheffield area?

My wife has Wegener's granulomatosis can any one help find the best consultant f...

macwalker

•9 years ago

4 Replies

National Eye Week is this week.

It is national eye week this week. Did you know that some types of vasculitis are diagnosed by the eye and some types of vasculitis affect the eye and sight....

It is national eye week this week. Did you know that some types of vasculitis ar...

Suzym2u

Moderator•9 years ago

4 Replies

should I take methotrexate with a cold?

Hi all I was diagnosed with Churg Strauss just under three years ago and I am currently on Methotrexate and Plaquenil, which I have responded to very well, I...

Hi all I was diagnosed with Churg Strauss just under three years ago and I am cu...

sarahdollygirl

•9 years ago

2 Replies

Basic Information sheet

I have produced an Information Sheet, regarding my condition, that I can give to any 'new' Doctors/Consultants. It gives my full name, NHS & Hospital Numbers,...

I have produced an Information Sheet, regarding my condition, that I can give to...

AndrewT

•9 years ago

15 Replies

My 10 year old and vasculitis

Hi it's been a while since I posted on here. My 10 year old daughter was diagnosed with cerebral vasculitis earlier this year and we are very lucky because...

Hi it's been a while since I posted on here. My 10 year old daughter was diagnos...

Shelley46

•9 years ago

23 Replies

Nose bleeds - quick question

Medics (and people on HU forums) have asked if I have nose bleeds. I've always said no. Can anyone clarify what a nose bleed is. I would describe a nose...

Medics (and people on HU forums) have asked if I have nose bleeds. I've always ...

babssara

•9 years ago

11 Replies

South Yorkshire Support Group Meeting

Hi everyone. Lynne Jacques and I will be holding a new support group meeting in South Yorkshire on Sunday the 1st of November 2015 between 1:30pm and 4:30pm....

Hi everyone. Lynne Jacques and I will be holding a new support group meeting in ...

RichardE

Volunteer•9 years ago

5 Replies

Pain/Fatigue in Vasculitis (even when other symptoms are under control)

Firstly, can I say that this forum has been invaluable over the last 9 months in making progress with my own health issues. I have found so many threads really...

Firstly, can I say that this forum has been invaluable over the last 9 months in...

PCAD

•9 years ago

7 Replies

Feed back from the Portsmouth 9th Arthritis and Connective Tissue Conference, yesterday.

This is a photo from yesterday at the Portsmouth Hospital Arthritis and Connective Tissue Conference for patients. Topics covered Inflammatory Arthritis,...

This is a photo from yesterday at the Portsmouth Hospital Arthritis and Connecti...

Suzym2u

Moderator•9 years ago

3 Replies

First "normal " illness since diagnosis?

Hi everyone. As I'm a newbie I would like your opinions please. Not had my first rheumy appt yet (this Friday) but diagnosis confirmed by private rheumy 3...

Hi everyone. As I'm a newbie I would like your opinions please. Not had my fir...

babssara

•9 years ago

6 Replies

WG cannot confirmed??Worried

Thank you for anyone who can help answer my questions,this is a nightmare that has no ending and it really effects my life knowing about WG . I had 3 blood...

Thank you for anyone who can help answer my questions,this is a nightmare that h...

Nancyp

•9 years ago

11 Replies

Multiple sclerosis and vasculitis

Hi. I have had Multiple Sclerosis for 8 yrs and last year had a TIA. My neuro is sending me for angiogram and CT scan on my neck and brain. He mentioned the...

Hi. I have had Multiple Sclerosis for 8 yrs and last year had a TIA. My neuro is...

3joanne

•9 years ago

7 Replies

Notification of the 2015 West Midlands Vasculitis Support Group Annual Meeting, which this year will be held on Sunday 11th October.

The speakers on this occasion will be: Prof. Caroline Savage, Head of the Experimental Medicines Unit at GlaxoSmithKline - her talk will be entitled 'Scanning...

The speakers on this occasion will be: Prof. Caroline Savage, Head of the Experi...

Suzym2u

Moderator•9 years ago

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The next informal vasculitis support group meeting for South East London North West Kent will be on 26th September 2015

The next informal vasculitis support group meeting for South East London North West Kent will be held at The Stage Door, Hythe Street, Dartford Kent. This...

The next informal vasculitis support group meeting for South East London North W...

Suzym2u

Moderator•9 years ago

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Feedback from the new Northumberland and Cumbria first support group meeting

Just wanted to say what a great meeting we all had at the very first Northumberland and Cumbria support meeting, at the weekend.. We were a group of 22,...

Just wanted to say what a great meeting we all had at the very first Northumberl...

Suzym2u

Moderator•9 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for September 2015

Post op

Leeds NHS Trust - Long Term Condition Management Workshops

Sinus problems

Alternative to Methotrexate?

Churg-Strauss and treatment

Vasculities MPA

Christmas Fair in the Peak District for Vasculitis UK - Date for your Diary

Non Systemic Vasculitic Neuropathy, mononeuritis multiplex.

Vasculitis Research Questionnaire - Part Two

Autoimmune diseases, asbestos, silica, dust...

Total knee replacement

My last analysis.

For how long wg patients have to get medication and infusion?Does anyone get off from wg medication?

Vasculitis East Midlands informal lunch and get together - October 3rd

Progress

Wegener's granulomatosis

National Eye Week is this week.

should I take methotrexate with a cold?

Basic Information sheet

My 10 year old and vasculitis

Nose bleeds - quick question

South Yorkshire Support Group Meeting

Pain/Fatigue in Vasculitis (even when other symptoms are under control)

Feed back from the Portsmouth 9th Arthritis and Connective Tissue Conference, yesterday.

First "normal " illness since diagnosis?

WG cannot confirmed??Worried

Multiple sclerosis and vasculitis

Notification of the 2015 West Midlands Vasculitis Support Group Annual Meeting, which this year will be held on Sunday 11th October.

The next informal vasculitis support group meeting for South East London North West Kent will be on 26th September 2015

Feedback from the new Northumberland and Cumbria first support group meeting

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