Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for February 2024

white blood cells

l have a low neutrophil count l know this can be caused by the immune system , but what does it mean ? How common is it ? Can l still have rituximub treatment...

l have a low neutrophil count l know this can be caused by the immune system , b...

artists

•10 months ago

5 Replies

Selbourn

Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep...

Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituxima...

Selbourn

•10 months ago

4 Replies

Rare Disease Day

On the rarest day of this year we celebrate #RareDiseaseDay Spread the word in support of the #raredisease patients, the people who support them and the...

On the rarest day of this year we celebrate #RareDiseaseDay Spread the word in ...

zoe69

Moderator•10 months ago

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Robstevens

I've been on prednisolone for 10 years. Can't get off it. Even with nucala injections every 4 weeks. I had churg Strauss syndrome. And still on 11 drugs to...

I've been on prednisolone for 10 years. Can't get off it. Even with nucala inje...

Guccibee

•10 months ago

8 Replies

Avacopan side effects

Hi All, Could anyone please tell me if they are suffering from any Avacopan side effects, I’m off prednisone now and purely on Avacopan but getting lots of...

Hi All, Could anyone please tell me if they are suffering from any Avacopan sid...

Robstevens1970

•10 months ago

12 Replies

Covid Vaccines - Update

Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of rituximab and was hoping to get it done first. Just seen...

Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also d...

Galaxy2

•10 months ago

1 Reply

Scalp nerve pain

I have GPA and recently noticed that one half of my scalp is sore to the touch but the other side isn't. I am in remission and not on any meds for my GPA...

I have GPA and recently noticed that one half of my scalp is sore to the touch ...

Red-head44

•10 months ago

7 Replies

Patient awareness evening

Members of Renal team at Preston Royal are running an patient awareness evening March 12 at Lancaster University Innovation Centre Living with vasculitis is...

Members of Renal team at Preston Royal are running an patient awareness evening...

zoe69

Moderator•10 months ago

1 Reply

Polymyalgia

I am quite new to HealthUnlocked and Polymyalgia, although I did join some time ago for my late husband and his Kidney problems . I became ill with Polymyalgia...

I am quite new to HealthUnlocked and Polymyalgia, although I did join some time ...

sylla123

•10 months ago

11 Replies

Can anyone help me with an explanation?

I was diagnosed with microscopic poyangiitis in 2007. Recent test results included Anti-Scl75Ab+. I have not seen this before and do not understand it. Can...

I was diagnosed with microscopic poyangiitis in 2007. Recent test results includ...

amms43

•10 months ago

4 Replies

Benign breast lump

Hi, just wondering if anyone else has had anything similar. I had a recall on my routine mammogram and had a follow up ultrasound and biopsies taken from the...

Hi, just wondering if anyone else has had anything similar. I had a recall on m...

Allotmental

•10 months ago

4 Replies

Vasculitis

Is it OK to have a tooth extraction 2 weeks after Rituximab infusion?

EbonyWillow

•11 months ago

2 Replies

Covid Vaccines - Can you still book them?

Hi all, something that has slipped my mind but it’s been 6 months since I had my last Covid Vaccine. Are the Immune Deficient still eligible? If so how do we...

Hi all, something that has slipped my mind but it’s been 6 months since I had my...

Investigator1

•11 months ago

7 Replies

I need help..

Hi there I’m a bit of a complicated one but very unwell . diagnosed with probable behçets in 2020 post collapse and random left sided paralysis and referred...

Hi there I’m a bit of a complicated one but very unwell . diagnosed with probab...

Chelleybelly

•11 months ago

10 Replies

Avacopan and Pred

Hi, I had my first rituximab infusion last Tuesday. I have been supplied Avacopan, but still have Pred 40mg a day. No one has told me to stop Pred before...

Hi, I had my first rituximab infusion last Tuesday. I have been supplied Avac...

lollypocket

•11 months ago

18 Replies

Covid jabs to be sold in pharmacies

hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not...

hi Has anyone else any information regarding selling of Covid jabs from next mo...

Main1234

•11 months ago

1 Reply

Imperial College Help please

Hi, further to my last post - thank you all so much - my GP and Renal Consultant are in agreement that I see a rheumatologist as well as continuing to see my...

Hi, further to my last post - thank you all so much - my GP and Renal Consultant...

Daisyboodle

•11 months ago

14 Replies

Rare Disease Day 2024 countdown

23 days to the #RareDiseaseDay , #vasculitis is a rare #autoimmune rheumatic disease! #raredisease We are supporting #rarediseaseday2024

23 days to the #RareDiseaseDay , #vasculitis is a rare #autoimmune rheumatic ...

zoe69

Moderator•11 months ago

Be the first to reply

Rare Disease Day 2024 countdown

24 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic disease! #raredisease We are supporting #rarediseaseday2024

24 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...

zoe69

Moderator•11 months ago

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Where do I go from here?

I've many years history of Rheumatoid Arthritis and Polymyalgia (PMR). I developed vasculitis in August, possibly triggered by apixaban.That had been started...

I've many years history of Rheumatoid Arthritis and Polymyalgia (PMR). I develop...

oldtimer2

•11 months ago

6 Replies

Rare Disease Day 2024 countdown

25 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic disease! #raredisease We are supporting #rarediseaseday2024

25 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...

zoe69

Moderator•11 months ago

Be the first to reply

Rare Disease Day 2024 countdown

26 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic disease! #raredisease We are supporting #rarediseaseday2024

26 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...

zoe69

Moderator•11 months ago

Be the first to reply

Rare Disease 2024 Awareness

27 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic disease! #raredisease We are supporting #rarediseaseday2024

27 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...

zoe69

Moderator•11 months ago

2 Replies

Rare Disease Day 2024 awareness

28 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic disease! #raredisease We are supporting #rarediseaseday2024

28 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...

zoe69

Moderator•11 months ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for February 2024

white blood cells

Selbourn

Rare Disease Day

Robstevens

Avacopan side effects

Covid Vaccines - Update

Scalp nerve pain

Patient awareness evening

Polymyalgia

Can anyone help me with an explanation?

Benign breast lump

Vasculitis

Covid Vaccines - Can you still book them?

I need help..

Avacopan and Pred

Covid jabs to be sold in pharmacies

Imperial College Help please

Rare Disease Day 2024 countdown

Rare Disease Day 2024 countdown

Where do I go from here?

Rare Disease Day 2024 countdown

Rare Disease Day 2024 countdown

Rare Disease 2024 Awareness

Rare Disease Day 2024 awareness

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