Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for October 2023

2nd Dose of Shingrix - How Long After Rituximab?

Hi everybody as mentioned in an earlier post I had my 1st Shingrix Vaccine yesterday, no worries my Consultant told me no closer than a month before my...

Hi everybody as mentioned in an earlier post I had my 1st Shingrix Vaccine yeste...

•1 year ago

Lichen planus

Hi everyone, I have EGPA diagnosed in Jan this year and have been navigating this all year, I am on Methotrexate and a 5mg daily Pred (due to low cortisol,...

Hi everyone, I have EGPA diagnosed in Jan this year and have been navigating th...

•1 year ago

EGPA nerve involvement

I have had what I have thought is 2 long bouts of Sciatica, hugely painful. I have just spoken to a lovely GP who took a lively interest in me and suggested it...

I have had what I have thought is 2 long bouts of Sciatica, hugely painful. I ha...

•1 year ago

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Consultant East Yorkshire

Hi allI have EPGA and just moved to Beverley in the East Riding of Yorkshire. Have managed to register and see(!) a GP who has referred me to a consultant in...

Hi allI have EPGA and just moved to Beverley in the East Riding of Yorkshire. Ha...

•1 year ago

Inactive Shingles jab

Has anyone had this yet and is it OK? I am on Benralizumab and 2.5/day pred plus usual assortment of statins/blood pressure pills and anti-platelet.

Has anyone had this yet and is it OK? I am on Benralizumab and 2.5/day pred plus...

•1 year ago

Covid - Beware Getting Treatment - Don’t Test Positive on a Friday - Some Answers

Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be...

Well I said I would update you all regarding the ordeal I had had regarding my p...

•1 year ago

change in ordering lateral flow tests

hope everyone is as well as can be and prepared for Autumn/ Winter. Not sure if everyone is aware but the way lateral flows are ordered I understand is...

hope everyone is as well as can be and prepared for Autumn/ Winter. Not sure ...

•1 year ago

advice

I have been told I have Vasculitis not sure what type. Hospital sent for me as they were worried about my kidneys. After spending a worrying night in hospital...

I have been told I have Vasculitis not sure what type. Hospital sent for me as t...

•1 year ago

Covid - Beware Getting Treatment - An Update

So you will have all read about my ordeal regarding the acquisition of Anti Virals and my last post on Monday the 9th was that I had been contacted by a NHS...

So you will have all read about my ordeal regarding the acquisition of Anti Vira...

•1 year ago

anca vasculitis

Hi I have had my first dose of rituxaban for my vasculitis which has caused stage 5 kidney disease. the only side effect I have developed is a swollen right...

Hi I have had my first dose of rituxaban for my vasculitis which has caused sta...

•1 year ago

Covid vaccine after ribuximub

how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I...

how long should l wait after having ribuximub to have my Covid booster. I had my...

•1 year ago

Covid - Beware Getting Treatment

it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my...

it’s currently 08.30 in the morning and I have probably had the worst ordeal eve...

•1 year ago

pred and life after

I don’t really know I’ve been told I’ll on low dose pref the rest of my life, to keep my vasculitis at bay currently on 25mg a day

I don’t really know I’ve been told I’ll on low dose pref the rest of my life, to...

•1 year ago

Nasal flu vaccine transmission

For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They...

For anyone who has children, or close contact, and is on immunosuppressants, hav...

•1 year ago

NHS Guidelines- Entitlement for Antivirals and Vaccines

The NHS have published guidelines for those who are entitled to have anti virals should they contract covid. They have also published a explanation of who...

The NHS have published guidelines for those who are entitled to have anti virals...

Administrator•1 year ago