Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for May 2020

Sheilding

As from tomorrow in the U/K we can go out for a walk with our partners as long as we self distance, what's your thoughts on that and was wondering when will...

As from tomorrow in the U/K we can go out for a walk with our partners as long a...

•5 years ago

Return to work with GPA

I'm due to return to work, as I am taking both Prednisolone and Azathioprine I'm in the high risk sector. I really don't feel safe in returning, but need to do...

I'm due to return to work, as I am taking both Prednisolone and Azathioprine I'm...

•5 years ago

Have we had Covid 19?

Did we have COVID 19? As a family we think we may have had Covid-19. I know the timeline is much earlier than the medical people are working on, but there...

Did we have COVID 19? As a family we think we may have had Covid-19. I know th...

•5 years ago

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Wegeners Granulamatosis - looking for tips

I am looking to find others with Wegeners Granulamatosis who are currently working as I am keen to understand what support is out there for someone desperately...

I am looking to find others with Wegeners Granulamatosis who are currently worki...

•5 years ago

Thoughts please

Hello all It has been a while since I have posted on here. I dont want to say too much for the minute but to show you some pictures and ask for your opinion....

Hello all It has been a while since I have posted on here. I dont want to say to...

•5 years ago

Masks.

Thanks everyone who replied to my query. Your suggestions varied from - attend with mask - don’t under any circumstance go.. I did what I should have done in...

Thanks everyone who replied to my query. Your suggestions varied from - attend w...

•5 years ago

Be the first to reply

Face mask?

I am in the shielded category of the population and have been called into my local GP for a blood test. My husband can take me, do I need to wear a face mask?

I am in the shielded category of the population and have been called into my loc...

•5 years ago

Nausea with Azathioprine

Hi all, I was diagnosed with GPA last December and after being on Prednisolone and Cyclophosphomide for 4 months the Steroids are greatly reduced and I have...

Hi all, I was diagnosed with GPA last December and after being on Prednisolone ...

•5 years ago

Shielding and Living with Someone Who is Not

Hi All I am in the extremely vulnerable category and I have been firmly sticking to the shielding rules and waiting to hear the next advice but I do have a...

Hi All I am in the extremely vulnerable category and I have been firmly sticking...

•5 years ago

Life after shielding

Hi hope everyone is keeping as well as possible in this strange new world. Has anyone any thoughts about how we will progress from shielding after the 12...

Hi hope everyone is keeping as well as possible in this strange new world. Has ...

•5 years ago

Pred , tocilizumab and methotrexate Anyone on all 3 together??

Hi I have LVV , struggled to get inflammation down with pred , then methotrexate added , still no improvement.Tocilizumab added last November, first...

Hi I have LVV , struggled to get inflammation down with pred , then methotrexate...

•5 years ago

It was the very first World Vasculitis Day, today, 15th May 2020

World Vasculitis Day Friday 15th May 2020 is the first ever WORLD VASCULITIS DAY. Today marks the first World Vasculitis Day, launched with a special...

World Vasculitis Day Friday 15th May 2020 is the first ever WORLD VASCULITIS D...

Moderator•5 years ago

How to get to hospital safely

Hi, I've got a check up appointment in June at the hospital which is not a walking distance away. I do not have anybody who can drive me, taking a bus is out...

Hi, I've got a check up appointment in June at the hospital which is not a walki...

•5 years ago

Rituximab

Hi all, hope everyone is staying safe and well? Just wondering if anyone has had any rituximab treatment whilst all the lockdown has been in place. I’m due for...

Hi all, hope everyone is staying safe and well? Just wondering if anyone has had...

•5 years ago

Sign up to the COVIDENCE UK Study and contribute to the fight against coronavirus.

A team of doctors, scientists, public health specialists and health economists from six universities – Queen Mary University & Kings College, London, The...

A team of doctors, scientists, public health specialists and health economists f...

Moderator•5 years ago

Please read the leaflet and then do the survey

The most common medication for those that have vasculitis is steroids (prednisolone). Vasculitis UK and other patient organisations has worked closely with...

The most common medication for those that have vasculitis is steroids (prednisol...

Moderator•5 years ago

COVID19 Saved Angela’s Life - BBC News

COVID19 Saved My Life Angela was transferred to the Royal Brompton Hospital and was diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA)...

COVID19 Saved My Life Angela was transferred to the Royal Brompton Hospital an...

Moderator•5 years ago

Cyclophosphamide

Hi I am Vasculitis. Peripheral Neuropathy, and Auto Immune Encephalitis My Immunologist and Neurologist put me on Cyclophosphamide for two years and without...

Hi I am Vasculitis. Peripheral Neuropathy, and Auto Immune Encephalitis My Immu...

•5 years ago

Monday/Tuesday BBC2 Royal Free Hospital

Date for your diaries next week ...Monday/Tuesday BBC2 ...Royal Free Hospital and coping with COVID19. I believe that part of the programme will cover immune...

Date for your diaries next week ...Monday/Tuesday BBC2 ...Royal Free Hospital an...

Volunteer•5 years ago

One thing I am grateful for

Hi everyone I’m just about to go to bed but before I do my nightly ritual of mouth washes, sinus washes, teeth flossing etc etc etc I was just thinking.......

Hi everyone I’m just about to go to bed but before I do my nightly ritual of mo...

•5 years ago

Hello

Hi everyone I’m new to this but I have a rare for of vasculitis called Takayasu Arteritis which lead to a heart valve replacement twice, and an aneurysm, late...

Hi everyone I’m new to this but I have a rare for of vasculitis called Takayasu ...

•5 years ago