Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,777 members • 6,750 posts

All posts for June 2020

Immunoglobulin replacement therapy

Hi everyone, hope you are all well. The treatments for my GPA have now beaten my immunoglobulin levels down so low that the Vasculitis clinic at Addenbrookes...

Hi everyone, hope you are all well. The treatments for my GPA have now beaten my...

•4 years ago

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) have just published a report based on a survey of 1,300 people with rare autoimmune

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) have just published a report based on a survey of 1,300 people with rare autoimmune rheumatic...

The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) have just published a r...

Moderator•4 years ago

Update for those Shielding - Vasculitis UK - COVID19 - June 26th 2020

https://www.vasculitis.org.uk/news/coronavirus-covid-19

https://www.vasculitis.org.uk/news/coronavirus-covid-19

Moderator•4 years ago

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Statins

A year ago I was prescribed Atorvaststin , 20 mg,however I found they were giving side affects that were troublesome,I had muscle aches and cramp in my calves...

A year ago I was prescribed Atorvaststin , 20 mg,however I found they were givin...

•4 years ago

Post coronavirus symptoms

Is it possible that Covid-19 is in some cases triggering vasculitis? It seems as though many people are for months suffering symptoms so similar to certain...

Is it possible that Covid-19 is in some cases triggering vasculitis? It seems as...

•4 years ago

Loss of Taste and smell

Hi does anyone know why I’ve lost my sense of smell and taste 5 years now.However very occasionally it comes back for a few days then disappears.Im currently...

Hi does anyone know why I’ve lost my sense of smell and taste 5 years now.Howeve...

•4 years ago

Migraine

I have had the most awful migraine for two days. I am on 10mg of Prednisolone a day, what can I take to help with my migraine as Paracetamol is not helping at...

I have had the most awful migraine for two days. I am on 10mg of Prednisolone a ...

•4 years ago

Prednisolone

For the women out there, has being on Prednisolone affected your periods in any way ?

For the women out there, has being on Prednisolone affected your periods in any ...

•4 years ago

Dothep

Have just started Dothep. Wondering what others have experienced with this drug for depression anxiety?

Have just started Dothep. Wondering what others have experienced with this drug ...

•4 years ago

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Vasculitis Outcomes in Relation to Care Experiences - volunteers wanted

VASCULITIS UK VOICES (Vasculitis Outcomes In relation to Care ExperienceS) is one of the many research studies supported by Vasculitis UK. It will include...

VASCULITIS UK VOICES (Vasculitis Outcomes In relation to Care ExperienceS) is o...

Moderator•4 years ago

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Vasculitis specialist

Can anyone recommend the best specialist in north east England for vasculitis?

Can anyone recommend the best specialist in north east England for vasculitis?

•4 years ago

My blood tests are negative but I have all symptoms of church Straus.

Hi I’ve been suffering with all symptoms of churg straus for a long time on rafts of medication to damp symptoms but Blood tests all negative.Anyone know why .

Hi I’ve been suffering with all symptoms of churg straus for a long time on raft...

•4 years ago

EGPA CONNECTION WITH COVED-19 .

EGPA : could coved - 19 causes , treatment and vaccine overlap with EGPA ? Is this something to be researched ?

EGPA : could coved - 19 causes , treatment and vaccine overlap with EGPA ? Is...

•4 years ago

Shielding in Wales extended

Have just read that Wales is extending the advice to extremely vulnerable to shield until the middle of August. Have they changed the criteria of “extremely...

Have just read that Wales is extending the advice to extremely vulnerable to shi...

•4 years ago

Immune system test

Hi all hope everyone safe and well Quick question can your consultant give a immune system mot,to see how it working,I’m still in medical remission just a few...

Hi all hope everyone safe and well Quick question can your consultant give a im...

•4 years ago

Spring VUK Newsletter 2020 is now available on line

https://www.vasculitis.org.uk/news/spring-newsletter-out-now

https://www.vasculitis.org.uk/news/spring-newsletter-out-now

Moderator•4 years ago

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Update COVID19 page - VUK website 2nd June 2020

https://www.vasculitis.org.uk/news/coronavirus-covid-19

https://www.vasculitis.org.uk/news/coronavirus-covid-19

Moderator•4 years ago

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Public Health Scotland survey into shielding experiences

The Scottish Government has asked Public Health Scotland to evaluate the shielding programme. Here is the survey they are asking shielding people in Scotland...

The Scottish Government has asked Public Health Scotland to evaluate the shieldi...

Volunteer•4 years ago

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Church Straus symptoms

I have many symptoms of churg strays but blood tests negative.Late onset severe asthma digestive problems sinus problems joint muscle pain eye problems loss of...

I have many symptoms of churg strays but blood tests negative.Late onset severe ...

•4 years ago