Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2021

Just been diagnosed with Takayasu Arteritis and feeling very anxious

Hi I have just been diagnosed with TAK. I started last year with severe headaches, constant dry cough and aching joints. I then got covid in December and...

Hi I have just been diagnosed with TAK. I started last year with severe headach...

•3 years ago

Plaquenil

Hi. I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyroidism. Recent arthralgia and myalgia and raised crp, esr, and platelets for...

Hi. I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyro...

•3 years ago

BMA says doctors will have to make very difficult choices about which patients get blood tests as the shortage of blood tubes worsens

https://www.bma.org.uk/bma-media-centre/bma-says-doctors-will-have-to-make-very-difficult-choices-about-which-patients-get-blood-tests-as-the-shortage-of-blood-

https://www.bma.org.uk/bma-media-centre/bma-says-doctors-will-have-to-make-very-...

Volunteer•3 years ago

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A new clinical trial will investigate whether a third dose of vaccine for people with weakened immune systems gives a stronger immune respo

The £2.2 million study will build on the OCTAVE trial, led by the University of Glasgow and co-ordinated by the University of Birmingham’s Cancer Research UK...

The £2.2 million study will build on the OCTAVE trial, led by the University of ...

Volunteer•3 years ago

For those with an interest - OCTAVE study initial findings reveal vaccine responses in patients with impaired immune systems

The OCTAVE trial is one of the largest studies in the world so far into post-SARS-CoV-2 vaccination in immunocompromised patients and is funded by the Medical...

The OCTAVE trial is one of the largest studies in the world so far into post-SAR...

Volunteer•3 years ago

Double jabbed in March now have covid

Hi, I have GPA and just found out I have covid. I've taken all necessary steps to keep myself as safe as possible, but have still caught it. I was on strong...

Hi, I have GPA and just found out I have covid. I've taken all necessary steps t...

•3 years ago

Diagnoses

I have been unwell for the last 18 months on and off, I have had 3 blood tests that have come back with a positive ANCA result, my GP didn’t tell me for the...

I have been unwell for the last 18 months on and off, I have had 3 blood tests t...

•3 years ago

Octave Study

Update on Octave Study Most of us need to continue to be careful as the vaccine may not be very effective....

Update on Octave Study Most of us need to continue to be careful as the vaccine ...

•3 years ago

Steroid sparing drugs

Hi All Well I have now now tried myco and aza in an attempt to reduce steroids. Have just had to stop with azathioprine due to another bad reaction. I am...

Hi All Well I have now now tried myco and aza in an attempt to reduce steroids. ...

•3 years ago

Potential delay in blood tests

Understand there is a nation blood bottle shortage, recent communication from GP surgery. Has anyone had their routine bloods delayed either at hospital or GP...

Understand there is a nation blood bottle shortage, recent communication from GP...

•3 years ago

Starting Thalidomide 10 years ago

Facebook reminded me that 10 years ago today I started on Thalidomide. Because of the horrific birth defect scandal it is only used now very rarely, for rare...

Facebook reminded me that 10 years ago today I started on Thalidomide. Because o...

Volunteer•3 years ago

The NHS England Getting It Right First Time Rheumatology report has been published.

For those with an interest The NHS England Getting It Right First Time Rheumatology report has been published The report does vital work, mapping the way...

For those with an interest The NHS England Getting It Right First Time Rheumat...

Volunteer•3 years ago

Another guide to likely antibody ranges post Covid vaccine

Here are some alternative antibody range results, albeit from a private testing company, but covering a lot of patients, and helpfully distinguishing between...

Here are some alternative antibody range results, albeit from a private testing ...

Volunteer•3 years ago

Tremors and vasculitis/Mycophenolate

Hi I take 500mg Mycophenolate twice a day. I have been suffering from tremors, I read that this could be a side effect. Has anyone experienced this? When I...

Hi I take 500mg Mycophenolate twice a day. I have been suffering from tremors, I...

•3 years ago

Muscle pain after MPA remission

I was diagnosed with MPA in 2015. Initially it presented with severe quadriceps pain then progressed to malaise and kidney involvement. Thankfully Rituxan put...

I was diagnosed with MPA in 2015. Initially it presented with severe quadriceps ...

•3 years ago

Is leflunomide causing my chest/heart 'flutters' or might it be a build up of inflammation?

I was diagnosed with PMR in February 2018 and until now my posts have been confined to the PMRGCA forum. I now need advice from Vasculitis UK. I was diagnosed...

I was diagnosed with PMR in February 2018 and until now my posts have been confi...

•3 years ago