Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for July 2012

Anxious about Rituximab

My first Rituximab is scheduled for 8th August. In clinic my consultant was busy so did not have time to ask questions and GP cannot answer either as she has...

My first Rituximab is scheduled for 8th August. In clinic my consultant was bu...

assumpta

•12 years ago

7 Replies

my photo

I've changed my photo to a sunset as I'm feeling sad at the mo and don't like seeing the me I've become and not how I think I look. sandra

I've changed my photo to a sunset as I'm feeling sad at the mo and don't like se...

hamble99b

Volunteer•12 years ago

12 Replies

work capability self-assessment

Does immune suppression include this? - "Because of your physical or mental health condition or learning disability, there would be a substantial risk to...

Does immune suppression include this? - "Because of your physical or mental h...

hamble99b

Volunteer•12 years ago

2 Replies

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ESA - what happens when the 12 months is up?

hamble99b

Volunteer•12 years ago

7 Replies

ill health pensions and esa

i was on ib beneyfit and came off it for 6 weeks in aprill 2011 thay siad i would have to apliy for esa in which i did and know say iam not intilalled to esa...

i was on ib beneyfit and came off it for 6 weeks in aprill 2011 thay siad i woul...

patm17

•12 years ago

9 Replies

INCAPACITY BENEFIT & THE NEW ESA

Can anyone help explain the above to me please. I received a letter from DWP a short while ago after my long standing claim was re-assesed (firstly i had...

Can anyone help explain the above to me please. I received a letter from DWP a ...

mandijt

•12 years ago

6 Replies

Benefits and Work July 2012 Newsletter

http://www.benefitsandwork.co.uk/news/latest-news/1559-24-july-newsletter

John_Mills

Volunteer•12 years ago

4 Replies

Does anyone have experience of a rash ( and some swelling) on their ankle?

Over the last four/five weeks I have gradually developed a rash on my left calf and ankle. Now it is starting up on my right ankle. My GP prescribed...

Over the last four/five weeks I have gradually developed a rash on my left calf ...

BronteM

•12 years ago

10 Replies

N.I.C.E. - RITUXIMAB

On Monday the National Institute for Clinical Excellence held a meeting in Manchester to discuss the licensing of Rituximab in the treatment of GPA (Wegener's)...

On Monday the National Institute for Clinical Excellence held a meeting in Manch...

PatriciaAnn

•12 years ago

6 Replies

Retuximab

I am writing this message as struggling with things at the moment, my husband has just started his first course of Retuximab he is going for his second course...

I am writing this message as struggling with things at the moment, my husband ha...

hornet

•12 years ago

5 Replies

30/07/12 2 important programmes C4@8p.m. BB2@8:30p.m.

both about being sick or disabled must-see tv sandra

hamble99b

Volunteer•12 years ago

2 Replies

Newcastle Upon Tyne Area

Would anyone know of any support groups in the Newcastle area ?

prudence

•12 years ago

10 Replies

Has anyone used a good travel insurance company?

If anyone has used good travel insurance could you please let everyone know what type of Vasculitis you have and which travel insurance company you used...

If anyone has used good travel insurance could you please let everyone know what...

John_Mills

Volunteer•12 years ago

12 Replies

This is the direct link to the Vasculitis UK face book support group.

You have to be a member of facebook to join the group but it is a fairly active group and quite a few young people use this group to talk to each other. It is...

You have to be a member of facebook to join the group but it is a fairly active ...

John_Mills

Volunteer•12 years ago

Be the first to reply

Wegeners

Hi i was very ill 4 years ago but recovered after being on a high dose of pred after about 8 months, at that time no-one could be sure if it had been Wegeners,...

Hi i was very ill 4 years ago but recovered after being on a high dose of pred a...

prudence

•12 years ago

10 Replies

Help needed going on holiday abroad.

Having plucked up the courage I've agreed to go to Malta for a week with my son and his partner. I'm very aprehensive and a bit stressed as it's the first time...

Having plucked up the courage I've agreed to go to Malta for a week with my son ...

Porky

•12 years ago

14 Replies

Steroid tapering. Can anyone identify with these symptoms?

A while ago I asked about predisolone and muscle weakness, and in an effort to try and understand what is causing my symptoms, I have attempted another steroid...

A while ago I asked about predisolone and muscle weakness, and in an effort to t...

Galaxy2

•12 years ago

14 Replies

Hi I'm new here and my son has been diagnosed with urticarial vasculitis, I just wondered if anybody else has a child with it thanks

Betty4

•12 years ago

6 Replies

Son of 14 just diagnosed with WG, any advice?

He fell in on holiday in Greece last week, luckily the medical treatment he received was brilliant, put on dialysis for chronic kidney failure, then plasma...

He fell in on holiday in Greece last week, luckily the medical treatment he rece...

julesfarm

•12 years ago

10 Replies

Any advise on Low blood pressure

Having been diagnosed with WG in sept 2011, I have now finished chemo 3 mnth ago and currently on Azathiaprine 200mg daily. I am also on Furosemide 40mg and...

Having been diagnosed with WG in sept 2011, I have now finished chemo 3 mnth ago...

fillyhome

•12 years ago

4 Replies

Yorkshire North Support Group Meeting (New Group)Sunday 7th October

We are holding the 1st meeting of the Yorkshire North Support Group Sunday 7th October 2012 at Gomersal Park Hotel 1.30 till 4.30 Please come and join...

We are holding the 1st meeting of the Yorkshire North Support Group Sunday 7th ...

LynneJ

Vasculitis UK•12 years ago

Be the first to reply

Any tips on the best way to lose weight on prednisolone

Really disappointed as my consultant has asked me to stay on 7 mg of prednisolone for three months when I had steadily been reducing by half each month. I have...

Really disappointed as my consultant has asked me to stay on 7 mg of prednisolon...

Katie18

•12 years ago

7 Replies

Methotrexate

Just taken my first dose of methotrexate today (15mg) and feeling washed out - anyone know if is the norm or experienced similiar. The only other thing I...

Just taken my first dose of methotrexate today (15mg) and feeling washed out - a...

Dawnanna

•12 years ago

10 Replies

INFECTIONS & WG

I have WG and currently taking azathioprine, mmf & pred - how prone to infections will i be? I've had chicken pox (as have my children) but the advice is to...

I have WG and currently taking azathioprine, mmf & pred - how prone to infection...

mandijt

•12 years ago

5 Replies

Keeping your consultant team

I have an excellent healthcare team based in UHCW in Coventry where i used to live. I am now living 40 miles away, with correspondence and appointments going...

I have an excellent healthcare team based in UHCW in Coventry where i used to li...

Wellsie

•12 years ago

6 Replies

Vasculitis Treatment in Devon/Cornwall

It looks at though we will be moving 30 miles north of Plymouth on the Devon/Cornwall border. Does anyone know where the nearest specialists would be for my...

It looks at though we will be moving 30 miles north of Plymouth on the Devon/Cor...

Nadine99

•12 years ago

2 Replies

migranies mimic vas

Hi Now this is a bit raw for me as it only happened 5 weeks agao.. My mum has suffered from migranies for 3 plus 4 yrs... Took meds for them and 5 weeks ago...

Hi Now this is a bit raw for me as it only happened 5 weeks agao.. My mum has ...

NannyAlli

•12 years ago

3 Replies

Low blood count

My GP has just phoned to say my blood count has been gradually dropping over last few blood tests. I am on mycophenate motofil (Cellcept) and mepacrine. I feel...

My GP has just phoned to say my blood count has been gradually dropping over las...

KTWells

•12 years ago

3 Replies

Any advice about having WG and just been diagnoised with Diabetes.

Had a appointment this morning ,to confirm Type 2 and will be deciding on treatment after the results of several bloods been done.Just to start adjusting diet...

Had a appointment this morning ,to confirm Type 2 and will be deciding on treat...

deniseann

•12 years ago

5 Replies

Dad diagnosed with Wegener's Granulomatosis

Some 20 days ago my father was diagnosed with Wegener's, but no kidneys affected, at least not yet. We are Greek, living in Greece and first time even heard of...

Some 20 days ago my father was diagnosed with Wegener's, but no kidneys affected...

zmajevi

•12 years ago

7 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for July 2012

Anxious about Rituximab

my photo

work capability self-assessment

ESA - what happens when the 12 months is up?

ill health pensions and esa

INCAPACITY BENEFIT & THE NEW ESA

Benefits and Work July 2012 Newsletter

Does anyone have experience of a rash ( and some swelling) on their ankle?

N.I.C.E. - RITUXIMAB

Retuximab

30/07/12 2 important programmes C4@8p.m. BB2@8:30p.m.

Newcastle Upon Tyne Area

Has anyone used a good travel insurance company?

This is the direct link to the Vasculitis UK face book support group.

Wegeners

Help needed going on holiday abroad.

Steroid tapering. Can anyone identify with these symptoms?

Hi I'm new here and my son has been diagnosed with urticarial vasculitis, I just wondered if anybody else has a child with it thanks

Son of 14 just diagnosed with WG, any advice?

Any advise on Low blood pressure

Yorkshire North Support Group Meeting (New Group)Sunday 7th October

Any tips on the best way to lose weight on prednisolone

Methotrexate

INFECTIONS & WG

Keeping your consultant team

Vasculitis Treatment in Devon/Cornwall

migranies mimic vas

Low blood count

Any advice about having WG and just been diagnoised with Diabetes.

Dad diagnosed with Wegener's Granulomatosis

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