Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

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All posts for March 2014

As a vasculitis patient, you may be able to help in clinical research.....

http://www.vasculitis.org.uk/research/participate-in-research
John_Mills profile image
Volunteer

The British Heart Foundation have started a petition for fairer prescription charges. (From Twitter this afternoon via Lupus UK )

For anyone who maybe interested in reading and signing this petition http://ca...
John_Mills profile image
Volunteer

Progress so far

I've just completed week 5 of couch to 5k and can't believe I ran for 20 mins, i...
3113nettie profile image
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P-ANCA MPO positive since 2008.

Now the rheumy says I don't have vasculitis. One other test is positive now, and...
cruznlcsw profile image

The diagnosis and classification of giant cell arteritis

Tweeted this morning, so thought I would share it. http://www.sciencedirect.com...
Suzym2u profile image
Moderator

Have you puffy/ purple circles under eyes?... as "a symptom" of vasculitis?

This is a new one for me, however it seems to coincide with all my other CNS vas...
RareLily profile image

Two events this weekend fundraising and raising awareness for Vasculitis. One in Carlisle and one in Northampton.

Anita Jobling is setting herself a New Year challenge to undertake the Carlisle ...
Suzym2u profile image
Moderator

West Country support group lunch

Our next lunch will be on Sunday 27 April at the Barn Owl, Guardian Road, Exeter...

Become a service user or carer member of the group developing NICE guidance about moving from children's to adult services for young people.

The National Institute for Health and Care Excellence (NICE) and the NICE Colla...
Suzym2u profile image
Moderator

Uncomfortable heavy painful legs with WG and Stage 4/5 Kidney Failure.

I have WG and Chronic Kidney Failure and this last week I have been taking Parac...
Essex-jill profile image

cataracts because of steroids

having a cataract op next week,and was just wondering if anyone else has had it ...
quinnster profile image

I was told today that older people with vasculitis are not given medication. Could that be why the doctors haven't helped me yet?

I was told they don't know what to do by my internist.
cruznlcsw profile image

I have one question for all of you. Have anyone of you ever been on meds for high cholesterol?

Dawnbuttrum profile image

Hi fellow vasculiters , Has anyone had problems with biting their tongue whilst asleep?

I started doing this about 2 years ago and despite having a bite guard made at t...
maisie5 profile image

Would you be willing to take part in a new study? Genetic Alliance UK are looking for patients and families to take part...

My Condition, My DNA - Shaping genomic sequencing uptake in UK healthcare Intere...
Suzym2u profile image
Moderator

Diarrhoea

I inject 17.5mg of methotrexate weekly. One of the common side effects listed is...
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Vasculitis UK 2014 AGM - 11 May 2014

The 2014 Annual General Meeting of Vasculitis UK will be held on Sunday 11th May...
Suzym2u profile image
Moderator

Weight loss whilst still on steroids ?

My 13 year old daughter has wegeners granulomatosis - diagnosed August last year...
Bailey24 profile image

dapsone

is anyone taking dapsone,as part of their treatment I was put on this 3 weeks ag...
quinnster profile image

What exercise do you do and how often? How easy did you find getting your fitness back following treatments and to what level?

I have just finished my chemo treatments and have signed up to a beginner's runn...
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Palpitations

Does anyone else get palpitations,i find them really scary. I also take Levo for...

The London Vasculitis Support Group Meeting 27th April 2014

The London Vasculitis Group Meeting will be held at the Swiss Cottage Community ...
Albasain profile image

Doctor v Consultant

Consultant requested the doctor, after a wait of 3 months, I be retested after a...
Linmur1957 profile image

Become a patient partner - Wolverhampton CCG

Patient Partners is a free membership scheme providing interested local people r...
Suzym2u profile image
Moderator

Human lung made in lab for first time

From CNN but this sounds encouraging for the long term. http://edition.cnn.com/2...
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Martin loves to run and has raised money for other charities over the years. Martin is running this weekend for Vasculitis UK.

Martin was recently diagnosed with Wegener's Granulomoatosis ( GPA ) He is cur...
Suzym2u profile image
Moderator

Starting this weekend team members: Georgia, Kathleen and Chloe will undertake three fantastic fundraising events for Vasculitis

During 2014 team members: Georgia Upjohn, Kathleen Macnee and Chloe Hopgood will...
Suzym2u profile image
Moderator

A question about remission.

I understand vasculitis can go into remission. I was wondering if this is a fixe...
pinktiger53 profile image

Can we be Organ Donors?

I totally want to do this. But can "we"?
HiveMind profile image

Has anyone had difficulty getting help, because the doctor is concerned about putting you on medication due to age and side effects?

Here in the States people are sue happy, and my rheumatologist appears fearful t...
cruznlcsw profile image