Posts - Vasculitis UK | HealthUnlocked

Moderator•10 years ago

Really interesting, informative and excellent Oxford ‪‎Vasculitis‬ Support Group meeting yesterday - around 40 attended this meeting... ..... Speakers were...

Oxford Vasculitis Seminar March 29th 2015

Really interesting, informative and excellent Oxford ‪‎Vasculitis‬ Support Group...

Distinguising features of GCA: Joint pain in jaw, pain in temple area, tenderness across forehead above eye, tenderness of scalp and possible hair loss, ear...

Moderator•10 years ago

3 Replies

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This information has been given to me recently by a doctor who assumes some knowledge of GCA.

Distinguising features of GCA: Joint pain in jaw, pain in temple area, tendernes...

Hidden

•10 years ago

An informal social lunch on Sunday 26th April at the award winning Balloon Tree Farmshop and Café, Gate Helmsley, York, YO41 1NB. Please follow this link for...

York, East & North Riding Vasculitis Support Group Lunch

An informal social lunch on Sunday 26th April at the award winning Balloon Tree...

Moderator•10 years ago

Hello. I was just wondering whether anyone on here who has Takayasu has had angioplasty and/or stenting for narrowed arteries. I'm treated at Addenbrookes and...

Angioplasty?

Hello. I was just wondering whether anyone on here who has Takayasu has had angi...

JElsom

•10 years ago

4 Replies

My mum

Hi there. My mum has been recently diagnosed with Wegeners granulomatosis. She's in her 50's and I am beyond worried and upset about her prognosis. I'm not...

Hi there. My mum has been recently diagnosed with Wegeners granulomatosis. She'...

hgibbo

•10 years ago

16 Replies

"In The Loop Leeds" - keeping you informed about research

In the Loop is a pilot project run by Dr Louise Sorensen from the University of Leeds Rheumatic and Musculoskeletal Medicine. The project aim is to explore how...

In the Loop is a pilot project run by Dr Louise Sorensen from the University of ...

Moderator•10 years ago

Does anyone have any knowledge about whether Rituximab can be used if you are ANCA negative? I have CSS for nearly 2 years, but luckily a mild severity. My...

Can Rituximab be used if you are ANCA negative?

Does anyone have any knowledge about whether Rituximab can be used if you are AN...

JontyW

•10 years ago

29 Replies

Why do they say night sweats? I run about 20 fevers in 24 hours!

I had a horrendous menopause with high fevers which left me drained, exhausted and depressed. PMR followed closely on from this and now I have GCA and the...

I had a horrendous menopause with high fevers which left me drained, exhausted a...

Hidden

•10 years ago

11 Replies

Easter Break and Prescriptions

Make sure everyone is fully stocked for the Easter Break - John Mills is well prepared x

Make sure everyone is fully stocked for the Easter Break - John Mills is well pr...

Moderator•10 years ago

We have a couple of gatherings planned here for the West Country Vasculitis Support Group. If you'd like to come along to one or both just let me know....

West Country Social Events

We have a couple of gatherings planned here for the West Country Vasculitis Supp...

DevonLottie

•10 years ago

Hi, I am new to this site but have a question to which I can't find an answer on Google. After a long history of UCTD/SLE, I find my symptoms are changing and...

Possible vasculitis overlap?

Hi, I am new to this site but have a question to which I can't find an answer on...

Fennella02

•10 years ago

4 Replies

Open Consultation with Doctors and Patients with Experience of Giant Cell Arteritis

Open Consultation with Doctors and Patients with Experience of Giant Cell Arteritis British Society for Rheumatology and Royal College of Ophthalmologists...

Open Consultation with Doctors and Patients with Experience of Giant Cell Arteri...

The theme for this meeting will be relaxation and managing stress - with Rheumatology Specialist Nurse Alice Muir and Holistic Therapist Lisa Ranyell John...

Moderator•10 years ago

5 Replies

Vasculitis - East Midlands Support Group meeting May 2nd 2015

The theme for this meeting will be relaxation and managing stress - with Rheumat...

Moderator•10 years ago

Programme and Agenda 11.45 Registration and a light finger buffet lunch will be provided 1.00 AGM 2.00 Guest Speakers Dr Peter Lanyon ( Consultant...

Vasculitis UK AGM May 10th 2015

Programme and Agenda 11.45 Registration and a light finger buffet lunch will b...

Moderator•10 years ago

Professor Luqmani will give an update on the RUDY project, and members of Professor Luqmani's team will given an overview on vasculitis. Please follow this...

Oxford Vasculitis Support Group Meeting March 29th

Professor Luqmani will give an update on the RUDY project, and members of Profes...

Has anyone suddenly lost a tooth despite regular dental check ups ?

Moderator•10 years ago

3 Replies

Dental problems

Essex-jill

•10 years ago

4 Replies

A useful paper on GCA and PMR

http://www.ccjm.org/index.php?id=107953&cHash=010515&tx_ttnews[tt_news]=365385

Hidden

•10 years ago

11 Replies

West Yorkshire Support Group Meeting

Thanks to everyone for coming along to yesterday's meeting in Gomersal. I hope you all enjoyed it as much as Lynne, Sam, Suze and I did. Great to catch up with...

Thanks to everyone for coming along to yesterday's meeting in Gomersal. I hope y...

RichardE

Volunteer•10 years ago

Vasculitis‬ UK Spring Newsletter 2015 , ‪#Patient‬ Symposium, BSR Conference Report, ‪Takayasu‬ Arteritis, Fantastic ‪Fundraisers‬ , Day in the life of a...

Vasculitis UK Spring Newsletter

Vasculitis‬ UK Spring Newsletter 2015 , ‪#Patient‬ Symposium, BSR Conference Rep...

Just wanted to say that the meeting today in Leicester was excellent. Over 20 people attended the meeting, we met old friends and made some new friends too. If...

Moderator•10 years ago

6 Replies

Leicester Vasculitis Support Group Meeting

Just wanted to say that the meeting today in Leicester was excellent. Over 20 pe...

I would like to ask a question please - can anyone tell me if Scarlett Fever is around your area or at your children's school and what you might have been told...

Moderator•10 years ago

1 Reply

Scarlett Fever

I would like to ask a question please - can anyone tell me if Scarlett Fever is ...

http://www.dailymail.co.uk/news/article-2998990/Coma-victim-dead-hearing-doctors-ask-husband-permission-switch-life-support.html

Moderator•10 years ago

11 Replies

Interesting

http://www.dailymail.co.uk/news/article-2998990/Coma-victim-dead-hearing-doctors...

luggsey

•10 years ago

10 Replies

Interesting research on antibodies

Was very interested by this research into how autoimmune disorders (AD) arise. My mother has rheumatoid arthritis and I have psoriasis and LS. This falls in...

Was very interested by this research into how autoimmune disorders (AD) arise. M...

Shezian

•10 years ago

3 Replies

Vasculitis Patient Symposium - London - April 18th 2015

A Day to Remember - ‪#‎Vasculitis‬ Patient Symposium Saturday 18th April 2015 ‪#‎VasculitisUK‬ Symposium 2015 - The first International Vasculitis Medical...

A Day to Remember - ‪#‎Vasculitis‬ Patient Symposium Saturday 18th April 2015 ‪#...

I am due for a head MRI scan, and also waiting for ENT and eye appointment, re suspected WG, my ANCA came back negative I suspect due to the steroids I take...

Moderator•10 years ago

6 Replies

WG

I am due for a head MRI scan, and also waiting for ENT and eye appointment, re s...

bowler

•10 years ago

6 Replies

Northern Ireland Rare Disease Partnership March 24th 2015

For those living in ‪‎Ireland‬ diagnosed with ‪Vasculitis‬ - there is a ‪‎Rare Disease‬ meeting 24th March at 6pm - With support from the Research and...

For those living in ‪‎Ireland‬ diagnosed with ‪Vasculitis‬ - there is a ‪‎Rare D...

Moderator•10 years ago

Hi all, I've posted on this forum before my diagnosis, my test results have confirmed the diagnosis of the above in my aorta that was removed during my heart...

Giant Cell/Takayasu Arteritis

Hi all, I've posted on this forum before my diagnosis, my test results have con...

Chezh

•10 years ago

8 Replies

Vasculitis UK Twitter Paper

This is the latest VUK Twitter Paper - News via No Smoking Day , NHS Change Day , Genomic Sequencing Makes interesting reading .......

This is the latest VUK Twitter Paper - News via No Smoking Day , NHS Change Day ...

Moderator•10 years ago