Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for November 2019

Work and Illness

I recently started a new job (roughly a month ago) and for the most part it's gone quite well. I work under 25hrs per week (part-time), cos I don't think my...

I recently started a new job (roughly a month ago) and for the most part it's go...

•5 years ago

Dental pain

LVV diagnosis June 19 , now on tocilizumab weekly, methotrexate weekly and pred down to 16 mg daily. Started recently with sensitive teeth, particularly to...

LVV diagnosis June 19 , now on tocilizumab weekly, methotrexate weekly and pred ...

•5 years ago

Flu jab

I have GPA and just finished my course of cyclophosphamide. Feeling a lot better now. Just started Azathioprine which is being increased. I would like to know...

I have GPA and just finished my course of cyclophosphamide. Feeling a lot better...

•5 years ago

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EGPA / Neuropathy?

I have a potential diagnosis of egpa, but only symptom has been lung infiltrates, now on 5mg pred and was doing ok, only suddenly got tingling in hands and...

I have a potential diagnosis of egpa, but only symptom has been lung infiltrates...

•5 years ago

Protein in urine

Im still awaiting diagnosis for potential Wegeners, just received some urine test results positive for protein this is a first for me, I have contacted my GP...

Im still awaiting diagnosis for potential Wegeners, just received some urine tes...

•5 years ago

GPA flare sinus pain

Hi, My GPA has recently flared up quite suddenly with severe sinus problems. To be honest I was stupid and left it too long before recognising the symptoms...

Hi, My GPA has recently flared up quite suddenly with severe sinus problems. To ...

•5 years ago

Silly, not even Christmas-y, Joke

An old man, goes to the Doctors, complaining of constipation. The Doctor prescribes some Suppositories and suggests, that the man, return in a few days. Three...

An old man, goes to the Doctors, complaining of constipation. The Doctor prescri...

•5 years ago

Vasculitis UK Autumn/Winter 2019 Newsletter.

Just follow this link 😊 https://www.vasculitis.org.uk/news/autumn-newsletter-out-now

Just follow this link 😊 https://www.vasculitis.org.uk/news/autumn-newsletter-ou...

Moderator•5 years ago

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Does anyone else with egpa feel like a ground shaking motor chugging somehow right beside the house when you go to bed at night?

I know now that it’s not real but it sure feels like I’m living beside a rumbling freight train. It only happens at night. I think it is my ears but who...

I know now that it’s not real but it sure feels like I’m living beside a rumblin...

•5 years ago

Lecture in Dublin - ‘Environmental triggers of autoimmune disease”

Host is Prof Mark Little , TCD - Professor of Nephrology and Consultant Nephrologist at Trinty College Dublin / Tallaght University & Beaumont Hospital....

Host is Prof Mark Little , TCD - Professor of Nephrology and Consultant Nephrolo...

Volunteer•5 years ago

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Vascular surgeon appointment

Hi just wondering what to expect from an appointment with vascular surgeon. I have LVV which showed on scan in upper body vessels and left side. Have struggled...

Hi just wondering what to expect from an appointment with vascular surgeon. I ha...

•5 years ago

Symptoms worsening, waiting for appointment-advice please!

I’m waiting for a specialist appointment for ?EGPA diagnosis in 16 days time. Since I got the appointment back in August I’ve developed joint pain (hands and...

I’m waiting for a specialist appointment for ?EGPA diagnosis in 16 days time. S...

FeelingGreatNot

•5 years ago

About renin

We have seen the results of my son's blood and urine tests. They in general good: Mpa in remission and renal function stable. He stopped cortisone one month...

We have seen the results of my son's blood and urine tests. They in general good...

•5 years ago

Aloe vera and vasculitis

Is Aloe vera helpful for skin conditions affected by Vasculitis?

Is Aloe vera helpful for skin conditions affected by Vasculitis?

•5 years ago

Vasculitis UK are about to launch this years call for applications for Vasculitis UK research grants.

Vasculitis UK are about to launch this years call for applications for Vasculitis UK research grants. If you have any particular topic that you think is in...

Vasculitis UK are about to launch this years call for applications for Vasculiti...

Moderator•5 years ago

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Methotrexate and your Liver

Back again. Still tapering - 2 mg Pred and 12.5 mg Methotrexate and CRP/ESR normal but this month’s bloods show Serum ALT outside normal boundaries. Should I...

Back again. Still tapering - 2 mg Pred and 12.5 mg Methotrexate and CRP/ESR norm...

•5 years ago

AIH PBC and AI Pancreatitis

Hello. I’m new here and this is my first post. I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment) In February this year I was diagnosed...

Hello. I’m new here and this is my first post. I’m from Chile, I’m 42 yo and a m...

•5 years ago

Night Sweats comfort

I am having a relapse with GPA and again having night sweats. I am sure people who exercise a lot already are aware of this but as I cannot exercise due to...

I am having a relapse with GPA and again having night sweats. I am sure people ...

•5 years ago

No Blood Pressure

I have Takayasu Arteritis. Whenever I go to the GP or hospital, where they need to take my blood pressure, they can't find one. Can anyone tell me what they do...

I have Takayasu Arteritis. Whenever I go to the GP or hospital, where they need ...

•5 years ago