Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for May 2012

Route Map

Just given my GP a copy of the route map (PDF) he was very pleased and said he would be having a look at it later and he would be showing his students aswell.

Just given my GP a copy of the route map (PDF) he was very pleased and said he w...

tracynoe

•13 years ago

2 Replies

IM NEW TO THE SIGHT and need to know,how is the type diagnosed? what treatment is best ?

I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a biopsy, I had never heard of it before so after being prescribed Prednisolone...

I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a...

debbie123

•13 years ago

10 Replies

cerebral vasculitis

Have had this for 19yrs Has anyone with this find / think that there is vasculitis in other parts of their body or does the other symptoms / problems all...

Have had this for 19yrs Has anyone with this find / think that there is vasc...

magcor

•13 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Does this hot weather make any difference to your health or how you feel?

John_Mills

Volunteer•13 years ago

11 Replies

Congratulations to Jimmy Walker for completing his 79 mile walk for vasculitis UK. Jimmy has WG.

Read Jimmy's story.. :-) https://www.justgiving.com/John-Mills7 Jimmy - with Suilven in the background, and a long winding path adjacent to me - that we...

Read Jimmy's story.. :-) https://www.justgiving.com/John-Mills7 Jimmy - w...

John_Mills

Volunteer•13 years ago

5 Replies

How long have people stayed on Azathioprine for.

Just curious as I go to my WG consult next week.,we are going to be making decisions about my medication ,treatment etc .

Just curious as I go to my WG consult next week.,we are going to be making decis...

deniseann

•13 years ago

11 Replies

WHAT DID YOU DO FOR VASCULITIS AWARENESS MONTH?

Pat will soon be preparing a Vasculitis UK e-News containing lots of info about what happened in the Vasculitis UK world in May, and what's due to happen this...

Pat will soon be preparing a Vasculitis UK e-News containing lots of info about ...

John_Mills

Volunteer•13 years ago

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Eye Biopsy

Has anyone suffering from WG'S had an eye biopsy? If so how long do you stay in the day unit for and whats involved in the procedure?

Has anyone suffering from WG'S had an eye biopsy? If so how long do you stay in...

ISABEL12

•13 years ago

2 Replies

Charity Ball October 20th 2012 Bury St Edmonds Suffolk

Many of you will be aware that my late partner Gordon Mott ('Motty'), died just over 6 years ago on 13th April 2006. In January 1996 at Ipswich Hospital,...

Many of you will be aware that my late partner Gordon Mott ('Motty'), died just ...

John_Mills

Volunteer•13 years ago

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Congratulations to Sammi Jo and Marion for taking the Ben Nevis Challenge for Vasculitis UK.

http://www.examiner.co.uk/news/local-west-yorkshire-news/2012/05/10/kirkheaton-women-climbs-uk-s-highest-mountain-to-raise-awareness-of-mum-s-condition-vasculit

http://www.examiner.co.uk/news/local-west-yorkshire-news/2012/05/10/kirkheaton-w...

John_Mills

Volunteer•13 years ago

2 Replies

More than Back Ache

This might be totally unrelated to my husband's WG but he has had chronic back ache for 2 weeks now. He says the pain seems to go right round to the front as...

This might be totally unrelated to my husband's WG but he has had chronic back a...

Nadine99

•13 years ago

8 Replies

Has anyone found anything that helps with their Vasculitis symptoms?

I have changed my diet to a gluten free one (see details in another post) but I wondered if anyone had found anything else that helps with their Vasculitis?...

I have changed my diet to a gluten free one (see details in another post) but I ...

HiveMind

•13 years ago

7 Replies

absolutely devastated

I've just found out yesterday that my mum might have pancreatic cancer. The doctors' have diagnosed a cyst on my mum's pancreas, and they've said yesterday...

I've just found out yesterday that my mum might have pancreatic cancer. The doct...

joanne30

•13 years ago

9 Replies

candersartan

has anyone been prescribed this for high blood pressure. i have wg which affected my kidneys,my consultant put me on this drug,but told me it may affect my...

has anyone been prescribed this for high blood pressure. i have wg which affect...

quinnster

•13 years ago

6 Replies

Change of diet

Hi Everyone, I thought I would let you know about my change of diet and how much it has helped me with some of my Churg - Strauss Syndrome symptoms. It...

Hi Everyone, I thought I would let you know about my change of diet and how m...

HiveMind

•13 years ago

10 Replies

Unhelpful GP & Choose & Book?

My husband has WG and we've just returned from France to live back in UK. We registered with our new medical centre & were given a doctor. We saw him once,...

My husband has WG and we've just returned from France to live back in UK. We reg...

Nadine99

•13 years ago

10 Replies

Podcast Numero 2!!

Hello everyone, Firstly, apologies for my absence, I've been in and out of hospital recently following some issues with my eye. I have managed to now do...

Hello everyone, Firstly, apologies for my absence, I've been in and out of ho...

missm23

•13 years ago

3 Replies

Endorsement of the Route Map for Vasculitis

ROUTE MAP FOR VASCULITIS We have received this lovely endorsement from one of our members about the Route Map for Vasculitis. "Just to say thank you, my...

ROUTE MAP FOR VASCULITIS We have received this lovely endorsement from one of o...

PatriciaAnn

•13 years ago

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Consultation Response for Rare Diseases (Vasculitis UK)

John has now sent off his 15 page Consultation Response for Rare Diseases ..... taken forever to research and write but now it is done!! This is for everyone...

John has now sent off his 15 page Consultation Response for Rare Diseases ..... ...

John_Mills

Volunteer•13 years ago

15 Replies

Meeting in London today Best Outcomes for People with Autoimmune Diseases

John is at a rare disease seminar in London , speaking along side David Jayne, at this very moment ..."best outcomes for people with autoimmune diseases" John...

John is at a rare disease seminar in London , speaking along side David Jayne, a...

John_Mills

Volunteer•13 years ago

3 Replies

Anyone experienced a dizziness episode?

I opened my eyes this morning and quickly shut them again! The room was spinning at a fast rate of knots. I opened my eyes again and tried to focus on my...

I opened my eyes this morning and quickly shut them again! The room was spinnin...

HiveMind

•13 years ago

14 Replies

Thank goodness

I have just found you after having Wegeners for 9 years. I feel as if I have been let out of solitary confinement. At last there is someone who can understand...

I have just found you after having Wegeners for 9 years. I feel as if I have bee...

nannie

•13 years ago

4 Replies

Good Meeting with Consultant!

I had a really good meeting with my Rheumatologist on Monday! She was pleased I had found Vasculitis UK and said that the more I know about the illness the...

I had a really good meeting with my Rheumatologist on Monday! She was pleased I ...

LynneJ

Vasculitis UK•13 years ago

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LIVERPOOL VASCULITIS SUPPORT GROUP MEETING ON THURSDAY 12TH JULY AT 3 30PM AT THE ROYAL LIVERPOOL HOSPITAL.

Contact Keith Quinn kquinnefc@hotmail.co.uk

John_Mills

Volunteer•13 years ago

1 Reply

Just wanted to wish Jimmy all the best. Jimmy has WG and is walking 79 miles in the Highlands for Vasculitis UK

Please read Jimmy's just giving page if you have a min. WE opened a just giving page for Jimmy but Jimmy has sponsorship forms too. Scottish Power, Jimmy's...

Please read Jimmy's just giving page if you have a min. WE opened a just giving ...

John_Mills

Volunteer•13 years ago

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SOME GOOD NEWS TO SHARE RE THE ROUTE MAP FOR VASCULITIS.

Just to share some good news.... a consultant in the UK has just ordered 50 hard copies of the Route Map for Vasculitis to distribute to his Vasculitis...

Just to share some good news.... a consultant in the UK has just ordered 50 hard...

John_Mills

Volunteer•13 years ago

11 Replies

SELondon/NWKent Support Group - POSTPONED

I would like to remind everyone that tomorrows meeting of the S.E.London/N.W.Kent Support Group, due to be held in Dartford, has had to been postponed. The...

I would like to remind everyone that tomorrows meeting of the S.E.London/N.W.Ken...

JacquiM

Volunteer•13 years ago

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Vasculitis UK e-newsletter

This is the latest e-newsletter This is John's copy to show you as an example. If anyone would like to sign up for the e-newsletter please contact Patricia ....

This is the latest e-newsletter This is John's copy to show you as an example. I...

John_Mills

Volunteer•13 years ago

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Where can I get a vasculitis support wrist band?

I would like to show my support for vasculitis and would like to wear a wrist band. Where can I get one?

I would like to show my support for vasculitis and would like to wear a wrist ba...

tinac73

•13 years ago

5 Replies

HUDDERSFIELD EXAMINER READ HOLLY"S HAPPY STORY

http://www.examiner.co.uk/news/local-west-yorkshire-news/2012/05/17/clayton-west-mum-welcomes-baby-after-doctors-told-her-infertility-was-likely-86081-30986495/

http://www.examiner.co.uk/news/local-west-yorkshire-news/2012/05/17/clayton-west...

John_Mills

Volunteer•13 years ago

1 Reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2012

Route Map

IM NEW TO THE SIGHT and need to know,how is the type diagnosed? what treatment is best ?

cerebral vasculitis

Does this hot weather make any difference to your health or how you feel?

Congratulations to Jimmy Walker for completing his 79 mile walk for vasculitis UK. Jimmy has WG.

How long have people stayed on Azathioprine for.

WHAT DID YOU DO FOR VASCULITIS AWARENESS MONTH?

Eye Biopsy

Charity Ball October 20th 2012 Bury St Edmonds Suffolk

Congratulations to Sammi Jo and Marion for taking the Ben Nevis Challenge for Vasculitis UK.

More than Back Ache

Has anyone found anything that helps with their Vasculitis symptoms?

absolutely devastated

candersartan

Change of diet

Unhelpful GP & Choose & Book?

Podcast Numero 2!!

Endorsement of the Route Map for Vasculitis

Consultation Response for Rare Diseases (Vasculitis UK)

Meeting in London today Best Outcomes for People with Autoimmune Diseases

Anyone experienced a dizziness episode?

Thank goodness

Good Meeting with Consultant!

LIVERPOOL VASCULITIS SUPPORT GROUP MEETING ON THURSDAY 12TH JULY AT 3 30PM AT THE ROYAL LIVERPOOL HOSPITAL.

Just wanted to wish Jimmy all the best. Jimmy has WG and is walking 79 miles in the Highlands for Vasculitis UK

SOME GOOD NEWS TO SHARE RE THE ROUTE MAP FOR VASCULITIS.

SELondon/NWKent Support Group - POSTPONED

Vasculitis UK e-newsletter

Where can I get a vasculitis support wrist band?

HUDDERSFIELD EXAMINER READ HOLLY"S HAPPY STORY

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