Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,752 posts

All posts for December 2023

Vaccinations

I have Churg Strauss (EGPA) treated with methotrexate and steroids, and have been invited for Phnumonia and Shingles vaccinations. Are they safe/sensible to...

I have Churg Strauss (EGPA) treated with methotrexate and steroids, and have bee...

•4 months ago

help with the mental health side of vasculitis

hello all, I’ve just been recently diagnosed with suspected vasculitis. Waiting on skin biopsy results to determine which kind. Spent 5 days in hospital due...

hello all, I’ve just been recently diagnosed with suspected vasculitis. Waiting ...

•4 months ago

CRP Rise

Stopped pred in July this year & been fine since. Had bloods November & was told although bloods look good my ANCA has gone up. To be on safe side I am now...

Stopped pred in July this year & been fine since. Had bloods November & was tol...

•4 months ago

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GPA flare, is it likely even if I only have 1 symptom

I was diagnosed with GPA in 2017, I have had 3 flares since initial diagnosis and although the symptoms have got milder each time, I always have the same...

I was diagnosed with GPA in 2017, I have had 3 flares since initial diagnosis an...

•4 months ago

CNS Symptoms and Advice

I’d be so grateful if anyone with cns involvement can offer their experiences. I haven’t got a neurologist to ask advice from at the moment, I’m really hoping...

I’d be so grateful if anyone with cns involvement can offer their experiences. ...

•4 months ago

adrenal crisis?

hey, I have Takayasu’s and been on several different treatments over the last 3 years. My body isn’t responding to any of them, tocolizumab, methotrexate,...

hey, I have Takayasu’s and been on several different treatments over the last 3 ...

•4 months ago

Possible relapse, trouble seeing Rheumatologist.

Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to...

Hi, I have not posted in quite some time. Read other's mostly, and since I hav...

•4 months ago

Bronchitis

I have been coughing on and off for about a month, a few days ago I started feeling really ill. I phoned the surgery and was given an appointment with a nurse...

I have been coughing on and off for about a month, a few days ago I started feel...

•4 months ago

Disability Allowance - Any Advice Please

Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No...

Hi everybody. At a recent trip to hospital for my usual check ups a question was...

•4 months ago

Shrinrix vaccine

Is it safe for those of us suffering from inflammation skin vasculitis to have the shrinrix vaccine? My flares have really subsided in the last few months...

Is it safe for those of us suffering from inflammation skin vasculitis to have t...

•5 months ago

Sorted -,covid anti viral treatment

I managed to get covid a month after Rituxumab infusions, got free lateral flow test from independent pharmacy (boots and Tesco were hopeless and not signed up...

I managed to get covid a month after Rituxumab infusions, got free lateral flow ...

•5 months ago

Advice needed please

I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I then in November had Covid with 2 hospital admissions. I now have long Covid....

I've had GPA for 25 years with 2 relapses. I last had Rituximab in June 21, I t...

•5 months ago

Recurring high temperatures?

Does anyone else get frequent high temperatures? It feels like every other day atleast my temperatures hits 38 or above and palpitations have also returned....

Does anyone else get frequent high temperatures? It feels like every other day a...

•5 months ago

Free Lateral Flow Tests - from pharmacy?

Hi I used to be able to order free LFT from the gov/nhs website as it used to have an option for immuno supressed peeps. However it seems that option has now...

Hi I used to be able to order free LFT from the gov/nhs website as it used to h...

•5 months ago

UKIVAS Vasculitis Educational Course - Manchester November 2023

The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in...

The course was attended by around 70 attendees including junior doctors, registr...

Administrator•5 months ago

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shocking price of glasses

I have GPA and have facial pain across bridge of nose managed by medication daily. Some days after work (computer based) I can’t wait to take them off (I only...

I have GPA and have facial pain across bridge of nose managed by medication dail...

•5 months ago