Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for January 2019

Appointment update

I went to see my consultant on Tuesday and she is still insists I have Dermititis See photo of the mountain of medication I now have. Every day for 2 weeks I...

I went to see my consultant on Tuesday and she is still insists I have Dermititi...

•6 years ago

General anaesthetic with poor kidney function

Hi I have had GPA for 6 years and live pretty well now on a kidney function of around 25% (this having gradually increased from 2% when diagnosed). I have...

Hi I have had GPA for 6 years and live pretty well now on a kidney function of ...

•6 years ago

Shiny Lower front of legs

what is the cause of "shiny" skin on both shins,lower front legs...is there any connection with Vasculitis

what is the cause of "shiny" skin on both shins,lower front legs...is there any ...

•6 years ago

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"shiny front lower legs"

Does anyone suffer from this and if so what is causing this,I was diagnosed with WG in 20111

Does anyone suffer from this and if so what is causing this,I was diagnosed with...

•6 years ago

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Confused!

Hi... My disease was diagnosed in September 2017. I had rashes and terrible swelling on my legs and ankles. I was taken to a rheumatologist. Biopies revealed...

Hi... My disease was diagnosed in September 2017. I had rashes and terrible swel...

•6 years ago

Cutaneous Vasculitis

Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole...

Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over ...

•6 years ago

Cont.

Now pain in shins, knees and very stiff. And the stair fix does not help me get to basement where washer/dryer are. And except for my daughter who lives...

Now pain in shins, knees and very stiff. And the stair fix does not help me get...

•6 years ago

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LUCKY OR NOT?

I was feeling great over the holidays, mentally and physically. About 2 WEEKS ago, I fell down 13 hardwood stairs, feeling each bang on the way down. When I...

I was feeling great over the holidays, mentally and physically. About 2 WEEKS ag...

•6 years ago

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Advice please

Hi, I'm hoping someone can help me here. I have sjogrens and PMR but have always had feelings of blood flow issues. My mother had this also. I have recently...

Hi, I'm hoping someone can help me here. I have sjogrens and PMR but have alway...

•6 years ago

Low white blood count

Hi I have recently had my blood checked as I am on azathioprine for my gpa don't take steroids anymore but the Dr phoned to tell me to stop taking azathioprine...

Hi I have recently had my blood checked as I am on azathioprine for my gpa don't...

•6 years ago

The effect of cortisone on height

Hello everyone, my question this time is related to the consequences on the development in height and in the physical structure of young children which had to...

Hello everyone, my question this time is related to the consequences on the dev...

•6 years ago

Warfarin V apixaban

I have had Granulomatosis with polyangiitis since 2008. In 2014 I had a flare up which caused a blood clot in my internal jugular vein. Since 2014 I've been on...

I have had Granulomatosis with polyangiitis since 2008. In 2014 I had a flare up...

•6 years ago

A step forward.

Well, good news. I have been referred to the rheumatology department. And what’s even better is that they want to see me urgently, in 3 days in fact. This is...

Well, good news. I have been referred to the rheumatology department. And what’s...

•6 years ago

More Questions, about Poo-oo-oo

Dear Everyone, Sorry about the subject matter for, many of us, a HARD subject anyway. Not the Best of questions either but.....Do you ever POO, the bed, maybe...

Dear Everyone, Sorry about the subject matter for, many of us, a HARD subject an...

•6 years ago

Turmeric

Does anyone know if it's ok to have turmeric and black pepper mix whilst taking Methotrexate, Prednisone, Asprin, Statins and Omeprazole? As Tumeric is known...

Does anyone know if it's ok to have turmeric and black pepper mix whilst taking ...

Queenie-Stardust

•6 years ago

Does anyone out there suffer from Takayasu Arteritis?

Hi, I was diagnosed with Takayasu Arteritis in 2017 which is a disease that attacks the large vessels in your body. It was a shock as I have always been so...

Hi, I was diagnosed with Takayasu Arteritis in 2017 which is a disease that att...

Queenie-Stardust

•6 years ago

Vasculitis again

Morning all I'm back again, so need some advice from the people how know about this, I've had many treatments including chemo for which I could say for about 6...

Morning all I'm back again, so need some advice from the people how know about t...

•6 years ago

Is hydroxychloroquine working?

Hello, I've been on hydroxychloroquine for almost 6 months for urticarial vasculitis, although on a full dose of 400mg/day for only about 3 1/2 months, and I...

Hello, I've been on hydroxychloroquine for almost 6 months for urticarial vascu...

•6 years ago

Equality Act 2010

Does anybody know if AAV is covered under the equality act? (UK)

Does anybody know if AAV is covered under the equality act? (UK)

•6 years ago

P anca positive with mpo negative

Hi, I need some help and kind words as I’m losing my mental stability. I had tender spots on my left arm and hand with mild kind of pain for Six months off and...

Hi, I need some help and kind words as I’m losing my mental stability. I had ten...

•6 years ago

Azathioprine and hair loss?

Has any one else been on this and lost there hair. To begin with i wasnt but im pretty sure i am now. Ive been on it nearly a year at 150mg

Has any one else been on this and lost there hair. To begin with i wasnt but im ...

•6 years ago

Prednisolone

Hi all Just started taking Prednisolone for GPA vasculitis. The instructions state take in the morning with food. I’m really not an early morning eater and...

Hi all Just started taking Prednisolone for GPA vasculitis. The instructions st...

•6 years ago

A Little New Year Fun

This might amuse you...… I was reminded, of this 'saying', that Dates back to my school days....Yes I DID share a classroom with a Diplococcus! I went to a...

This might amuse you...… I was reminded, of this 'saying', that Dates back to my...

•6 years ago

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Cold & nasal polyops

Hi I am due for nasal polyop surgery in 4 days. Yesterday I began to have symptoms of a cold& sore throat. I know that they won't operate if you are sick. Any...

Hi I am due for nasal polyop surgery in 4 days. Yesterday I began to have sympto...

•6 years ago

Happy New Year 2019

Dear 'Everybody/ Everything', yes even the Cat, Happy New Year 2019....2019????- What's THAT, rather Rude phrase again, oh yes- F..K ME, What!!!!! It was, only...

Dear 'Everybody/ Everything', yes even the Cat, Happy New Year 2019....2019????-...

•6 years ago

On a more morbid note... Lol

Hi folks, just asking your opinions... I've been thinking about this for some time now and have decided that when I die, I would like to leave my body to the...

Hi folks, just asking your opinions... I've been thinking about this for some ti...

•6 years ago