Vasculitis UK | HealthUnlocked

Hi All I’d really interested in hearing from anyone who has been told they’ll be on predisolone for good. I’ve been on it for 13 years, varying doses but...

Hi everyone. I have been on methotrexate and prednisolone for nearly three years for Vasculitis GPA along with blood thinners and statins etc, was also on...

I was diagnosed with EGPA in December 2020, following intensive treatment including cyclophosphamide infusions I went into remission the following April. Since...

UPDATE for the HAVEN TRIAL !! Important information! Unfortunately, as we will not meet the deadline of 59 participants enrolled by 30 Jun 2024, the MRC...

I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary...

Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to...

Hi, Hope all are doing well. Making slow progress here, but all going in the right direction so I am told. Feel better than the beginning of the year for...

Every time I have I have a blood test - about every 2 weeks currently - it's reported on as having raised neutrophils. The kidney function has returned to...

May - Day 29 Vasculitis Awareness Month Our own 'nose ambassador's' story today! The impact of the ''limited'' vasculitis in her life was certnly not...

I am a mother of a 20 year-old daughter who was diagnosed with IGAv/HSP In February 2024. Her first flareup was very bad, ulcerated and has left pretty bad...

May - Day 30 Vasculitis Awareness Month - Large Vessel Vasculitis is rare, can be complex and can be difficult to diagnose as symptoms may confuse the...

May - Day 31 Vasculitis Awareness Month - The vasculitis diagnosis and treatment doesn't only affect the patient, it is life changing for their loved ones...

Last chance to share your health care experience as a patient and help us get enough data to drive a change for the benefit of patients living with Vasculitis,...

May - Day 30 Vasculitis Awareness Month Vasculitis affects both males and females and sometimes comes with symptoms that can mislead the clinicians. And that...

May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to...

May - Day 27 Vasculitis Awareness Month Takayasu Arteritis (TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very...

May - Day 26 VasculitiAwarenesMonth Whatever you do don't google GPA - go to https://www.vasculitis.org.uk/ for information. How is it to be diagnosed with a...

May - Day 25 Vasculitis Awareness Month Fatigue: an extreme sense of tiredness and lack of energy that can interfere with a person's usual daily activities....

May - Day 24 Vasculitis Awareness Month Wendy says: ''I’m always hopeful of discovering new solutions to the ongoing challenge of living with vasculitis.''...