Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for December 2022

Congratulations to John Mills for his MBE

Which was awarded for his services to people with rare diseases, and in particular the wonderful work he has done for many years for vasculitis patients and...

Which was awarded for his services to people with rare diseases, and in particul...

Volunteer•2 years ago

Happy New Year 2023

I know that 'others' have said this already BUT HAPPY NEW YEAR everyone. AndrewT

I know that 'others' have said this already BUT HAPPY NEW YEAR everyone. Andre...

•2 years ago

Sed rate, or erythrocyte sedimentation rate (ESR) SUDDEN increase

Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your...

Hello, I want to thank everyone that shared their personal insights replying t...

•2 years ago

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ANCA MPO and Systemic sclerosis positive - Suddenly ESR 93

Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids Rituxan infusions June 2022- 6 months later, no response - Repeat...

Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/s...

•2 years ago

2022 - Reflection and Thank You

As I lay on the sofa this morning recovering from my latest infusion of Rituximab it dawned on me how far we have all come on these voyages we are all on. In...

As I lay on the sofa this morning recovering from my latest infusion of Rituxima...

•2 years ago

No restrictions on arrivals from China - We just don't learn

just reading this morning about how the UK Government has no plans to reintroduce any restrictions from people arriving from China. I just cannot believe it,...

just reading this morning about how the UK Government has no plans to reintroduc...

•2 years ago

I guess that I Just Can't Win!

Dear All, I have Avoided COVID, despite several 'Folk' in my Flats catching it. I also Avoided it, at my Mothers Flats too...... and have remained Covid...

Dear All, I have Avoided COVID, despite several 'Folk' in my Flats catching it....

•2 years ago

A COVID Christmas

Greetings everyone. Having tested positive on Christmas Eve I was unable to go through the surgery to request the antivirals and had to go the 111 route which...

Greetings everyone. Having tested positive on Christmas Eve I was unable to go t...

•2 years ago

Season's Greetings

Dear Everyone, May I Wish Everyone a Very Merry Christmas or, if you prefer, Festive Wishes. I understand that not Everyone Celebrates Christmas- however I...

Dear Everyone, May I Wish Everyone a Very Merry Christmas or, if you prefer, Fe...

•2 years ago

Probably NOT the right Place to ask this but........

Does anyone have a Sensible Definition of 'WOKE' please. I have looked On Line, without much success, one Place- I forget where now- offered me one ONLY if I...

Does anyone have a Sensible Definition of 'WOKE' please. I have looked On Line, ...

•2 years ago

movymia Injection

does anyone have experience of using Movymia daily injection for osteoporosis ?? I’ve started but I’ve been having a runny tummy and wondered if this had...

does anyone have experience of using Movymia daily injection for osteoporosis ??...

•2 years ago

Covid Tests for Vulnerable People

Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still...

Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant...

•2 years ago

Covid Vaccine After Rituximab - Timimg

I must admit I am at a bit of a loss on this one due to the conflicting information I am getting. I had my last Rituximab in November and I have been offered...

I must admit I am at a bit of a loss on this one due to the conflicting informat...

•2 years ago

Best Wishes for John and Susan

Dear All, In the Spirit of Christmas, and indeed 'Love & Good Will', will you Join Me in sending John- and Susan- our Very Best Wishes..... with a Heartfelt...

Dear All, In the Spirit of Christmas, and indeed 'Love & Good Will', will you J...

•2 years ago

Anyone have experience with a Rituxan IV Infiltration?

Hello Everyone, Question: What are effects of Rituxan IV infiltration? Infiltration: IV medication leaks out of vein into the surrounding tissue. This...

Hello Everyone, Question: What are effects of Rituxan IV infiltration? Infilt...

•2 years ago

John Mills

Just to let all VUK HU members know, John Mills has been extremely poorly this last few months and is no longer an admin for this community. Please do contact...

Just to let all VUK HU members know, John Mills has been extremely poorly this l...

Volunteer•2 years ago

Successful Eye Exam

Dear All, Today I had an Eye Exam at my local Boots Opticians, it should have been Yesterday but 'They' had Staff Training, As always The Optician was Very...

Dear All, Today I had an Eye Exam at my local Boots Opticians, it should have b...

•2 years ago