Advice please

[Sophie1986]

So went to see my vasculitis specialist and he doesn't think I have it!!! He has put me on steroids and he says they are helping. Says that it may be ms and or vasculitis , has anyone had this or just me??

[Suzym2u Moderator Vasculitis UK]

MS or Vasculitis? If so , yes some people with vasculitis have been misdiagnosed with MS ..

[Hidden]

Hi Sophie,

You haven't given us enough information to comment apart from what Susan has replied. if you don't have Vasculitis why have you been given prednisolone? What type of specialist are you seeing and what are your symptoms/ bloods etc?

You are welcome to phone or e mail John or myself on the VUK helpline if you would like to talk things over.

Best wishes

Lynn

[Sophie1986 in reply to Hidden]

I've seen all the specialists but recently seen an ms and vasculitis specialist and a vasculitis specialist in London. I agree why am I on steroids , my bowel and bladder do not work - how do I contact you? Thank you soo much

[Hidden in reply to Sophie1986]

Hi Sophie,

This is the link to the helpline

vasculitis.org.uk/helpline