Ideally John I am writing this to you as you replied to my earlier post. If you have time to reply I would be very grateful. I didn't get off to a good start with my sons rheumatologist due to him not understanding what I was saying. I have now heard He has now apparently "walked out". To cut a long story short. I would like my son to be referred to a consultant who knows about vasculitis (GPA) as you had implied before I know this is imperative to his treatment and our local hospital doesn't know enough about vasculitis... Do I just need to say that I would like him to be referred to a specialist and then they will do it? Do you have any suggestions on what is the best way to approach this. We have an appt on 2nd May. I can't consult the dr as he didn't believe the ent consultant when he said vasculitis was the cause, so wouldn't refer us to a rheumatologist in the first place. Any suggestions on the best way to approach the appt on the 2nd would be very much appreciated.