I have been in remission now from MPA over two and a half year. I have also been very fortunate that post remission I have been able to resume a near normal active life. Fatigue has been there now and again but it has not caused too many problems. However things changed last April. I had a bad cold virus which eventually cleared up but left me with a cough which slowly subsided and is now almost gone. Shortly after the virus I started to experience bouts of fatigue which gradually got worse and more frequent. Most of May was pretty awful, June has shown a bit of improvement but it has significantly changed what I can do on a day to day basis (something I find difficult to accept and I keep battling with it). No doubt many of you will be thinking “welcome to the club”.
I was also getting muscle aches in my legs and it did lead me to believe my vasculitis was flaring. However after blood tests and a visit to my consultant I have been told there is nothing to indicate vasculitis activity. It has been put down to post viral fatigue which seems to last as long as it lasts according to what I have read. Despite being in remission I have remained ANCA positive and I was wondering if vasculitis is playing some part in this. That’s a question I am going to have to ask the consultant next time but I was wondering if anyone else has experience this sort of fatigue.