Vasculitis is discussed on the Jeremy Kyle p... - Vasculitis UK

Vasculitis UK

7,857 members6,880 posts

Vasculitis is discussed on the Jeremy Kyle programme today

Suzym2u profile image
Suzym2uModeratorVasculitis UK
6 Replies

Not sure if anyone has seen the Jeremy Kyle Emergency Room programme but there was a lovely lady, called Annalisa, on the programme today discussing her Vasculitis , Polyarteritis Nodosa . this is the link itv.com/itvplayer/jeremy-ky...

First time John Mills has ever watched day time TV :-)

Written by
Suzym2u profile image
Suzym2u
Moderator
To view profiles and participate in discussions please or .
6 Replies
Nadine99 profile image
Nadine99

Well, that was a first for me, to watch ITV Player, not used it before so it was really good to be able to watch something interesting that I missed.

Thanks for the link & best wishes to Annalisa, maybe she's a member here?

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toNadine99

Annalisa is a member in the face book group, I will ask to see if she is a member of HU and if not I will ask her if she would like to join :-)

BronteM profile image
BronteM

Just watched this....and my heart goes out to brave Annalisa. She is obviously having a very difficult time, and I'm sure everyone will recognise her problems with the steroids. One question though - why was no other treatment mentioned? There was no discussion about chemos like cyclophosphamide, or biological drugs, and her only option seemed to be the steroids and morphine to keep her pain under control. I don't know very much about PAN, but is this a very extreme case? This could really frighten some people who are recently diagnosed.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toBronteM

I think in the time allocated they were only interested in the here and now.. it would seem Annalisa suffers with Cutaneous PAN which is extremely rare and extremely painful , but it does not seem to have affected her systemically. We will ask her some questions in a day or two

Susan

Well done to Annalisa, that's not an easy thing to do, for going public about your illness and struggle. Best wishes.

Fennahj7115 profile image
Fennahj7115

Thank you for informing us about Annalisa on the Jeremy Kyle emergency room programme. I did not see it but managed to pick it up on catch up. I also felt there was so much more she could tell hoping she could get the support she needs. I also have PAN I know everyone is different but I do empathise when she speaks of the pain and the weight increase due to the steroids plus other side effects that were not mentioned. I wish her well and if there is anyway I could help I would be pleased to do so.

I would also like to take this opportunity to say a big thank you for all the encouraging, hugs,messages I have received from so many members . We stay in a difficult place still at the moment my husbands operation was cancelled and it maybe done a week later so. Two weeks time again perhaps the surgeon is waiting until Christmas and then he can let him have his op as Christmas present.

It's very important to stay positive however that in itself is a challenge. I am sure things will change soon!.

Not what you're looking for?

You may also like...

You may want to take a look at this - Vasculitis discussed briefly on the This Morning Show

You might want to see this, it was on itv today , this morning, 30 mins into the programme....
Suzym2u profile image
Moderator

Vasculitis in the brain

Hi All,Im new here. My 19 year old daughter is currently in hospital under a neurologist,i was...
tjcov1 profile image

Is vasculitis life threatening?

My husband suffers with osteoporosis and osteoarthritis and this has got worse over the last 3...
Peep3 profile image

This is the link to the BBC EAST MIDLANDS TODAY... news programme today 17th January 2013 "Talking about Vasculitis"

If anyone receives the BBC East Midlands News in your area you might like to watch today ... I...
John_Mills profile image
Volunteer

Is it Vasculitis?

In May 2011 I had a terrible rash on both arms which was very itchy, red and spotty which when...
Dawnanna profile image

Moderation team

See all
zoe69 profile image
zoe69Administrator
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.