I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a biopsy, I had never heard of it before so after being prescribed Prednisolone for the condition started looking into it a bit and found there are lots of different types! When I next seen my consultant (a dermatologist) I asked which type I had. After a debate (as he didnt want to tell me?) he said I had Leukocytoclastic Vasculitis and we have worked on it being that ever since, however, after 2 long years of Pred, Aza, Dap and lastly Colchicine I am in the same, if not worse condition than I was at the start and im starting to wonder why none of my other symtoms are being taken into account. It seems to me that whatever my complaint is at the time, neither my doctor or my consultant want to piece it together as being part of the same thing and im not sure either but would very much welcome any opinions out there about my condition. I have trouble and pain in some of my lower body joints (never before vas) I have developed high blood pressure (never before vas) My iron levels are very low (never before vas) Iv had Liver and Kidney test come back wrong (never before vas) I am constantly tired and by tired I mean VERY VERY tired (never before vas) and iv had leasions EVERYWHERE except my face. A week ago I had another biopsy taken as my consultant wants to see "whats going on" and will have those results when I see him next in another 2 weeks. Does anyone out there think (like me) that I have a different type to the type I was told and also are there any other drugs that may help calm this thing down, The ONLY thing that has worked so far is HIGH levels of Pred and as soon as I start dropping the dose gradually, it flares straight back up. Any help would be wonderful, Im desperate now! Thanks Deb
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.