Thank goodness: I have just found you after... - Vasculitis UK

Vasculitis UK

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Thank goodness

nannie profile image
4 Replies

I have just found you after having Wegeners for 9 years. I feel as if I have been let out of solitary confinement. At last there is someone who can understand how I feel!

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nannie profile image
nannie
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4 Replies
PatriciaAnn profile image
PatriciaAnn

Hi Nannie

Welcome. Just ask your questions or just take in what the others have to say. We will endeavour to answer questions to the best of our ability. If our members don't know we don't know the answer we have ways of finding out. I have also had WG for 9 years. It is so good to be able to relate to others in the same boat.

PatriciaAnn

DevonLottie profile image
DevonLottie

Hi Nannie, I too have WG and have had for 10 years. There are quite a few good support groups in the UK if you would like to meet up with people locally. If you are interested just let us know whereabouts you live and I'm sure the Vasculitis UK gang can point you in the right direction ...

John_Mills profile image
John_MillsVolunteer

John has WG, 11 years now for the first few years we had never met anyone else wit Vasculitis now we know of over a 1000. There are support groups all over the UK but I think you might have spoken to Jacqui already. I am sue you will find lots of friendly people to talk to and relate to here on Vuk/HU

take care

Susan

AndrewT profile image
AndrewT

Hello Nannie,

I have an 'uncatagorised vasculitis', means that they don't know quite what/which it is; there are several 'strains' overlapping in our words. However welcome 'on board' the forum. I think you will find it helpful. As John & Susan have said, an answer can usually be found to most questions put.

Good luck anyway

AndrewT

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