Does this hot weather make any difference to your health or how you feel?

[John_Mills]

[BooBoo39 Volunteer]

Hi Guys, I have noticed hot weather exacerbates my fatigue and also on my pain days the pain is much worse . Some days even in normal temperatures i am unable to control my own body temperature and i feel i am overheating. Obviously if this is happening when we get hot weather as well, as i feel very unwell . I now get frustrated and restless in hot weather whereas pre CNS Vasculitis i loved hot weather the hotter the better. Guess that is no longer the case.

Jo

[vivdunstan Volunteer]

I have much more problems in hot weather. I'm very similar to people with MS in this regard. I loathe the warmer weather. Pre falling ill with cerebral vasculitis I had no trouble with warm weather. In the heat I try hard to stay cool, including using a kooltie to cool me down. It makes all my neurological problems (which affect many different parts of my body, not just in brain) more severe.

[John_Mills Volunteer]

Thank you.. I have noticed John is much more prone to fatigue in the hot weather also his leg and ankle (the one which suffered the DVT) swell up so much more in hot weather and is very painful by evening. He also loved the hot weather pre WG but tends to stay out of the sun as much as possible now. But on the other hand in winter he suffers if he gets too cold, because it takes him such a long time to warm up again.

[LynneJ Vasculitis UK Volunteer]

I can identify with this also.

I am so glad you asked this question as I was beginning to think it might be the start of a flare.

My shoulders and ankles ache and I am totally out of energy, might be because although I am tired I find it hard to sleep, it is as if I cannot relax properly.

Thank you I wont worry now I know others feel like this.

[Galaxy2]

My consultant has told me to keep out of the sun and always wear factor 50 if I have to go outside on sunny days as I have found to my cost the sun is a trigger for a flare.

I also find that on hot days I feel excessively hot, when its mid twenties here I feel like i am in a tropical country with high humidity and find it unbearable, its like my body can't regulate my temperature properly anymore.

Saying that I don't think the actual heat affects my symptoms, I am actually having a good phase at the moment, I'm not sure why but hope it continues.

[KathyW]

Jenny I am guessing you are maybe on Azathioprine? My consultant told me the same but explained that Aza makes you more vulnerable to Skin Cancer so I should make sure I use high SPF and a good quality liberally. As for my symptoms, actually I am worse in the winter, I cannot get warm and I think I have the starting of Reynauds which comes as no surprise. The fatigue is always there whatever the weather, I just sleep even less when its very hot, although the sunshine makes me feel better, more a reflection of my mood I think than anything to do with the Vas. I think we are all the same but in different ways if that makes any kind of sense. The inability to control our body temperature seems to be something we all have in common. Take care and keep cool

[tracynoe]

My body seems to prefer this weather although I do have to stay out of the sun as I burn very quickly and have to use factor 50 all over. I have a rash starting on various parts shown it GP this morning and he's not sure if it's due to vasculitis, heat or possibly bites although they don't look or feel like bites. My raynauds is better in this weather and when the temp reaches 24c I can take my socks off.

[krasavica]

yes it does, i seem to have more symptoms in the sun.. like tiredness, swollen joints and pains and aches, however tanning and sunshine doesn't actually make any difference, it's just the heat i think.

[kath12341]

I find that cold weather hurts my joint sand as I also have reyanrds suffer with cold feet legs abd hands but the recent warmer spell has left me breathless and tired So I guess we are all affected by the weather changes I have also been told to stay out of the sun and am on mycopehnalate pre d ect

[Porky]

As said before I have great difficulty in regulating my body temperature, in the cold I suffer from Reynolds with the associated pain and my skin is worse. In the heat I feel unwell and where I had the rashes the sun makes the areas very painful. I keep out of the sun and wear SPF 50 as I'm on Methotrexate which make me sensitive to the sun. Over the latest hot days I've had awful fatigue with muscle and joint aches but then I've also had a stressful few days as well. I enjoy the brighter weather as my mood improves.

[Mumito66]

As I am on MTX I was advised to stay out of the sun because it increases the chances of skin cancer.I find the warm weather is great for the pain in my joints but my fatigue is increased. In the warm climate I am able to take off my thermals and the 2 pairs of socks that I wear on a regular basis. I also suffer from raynauds on top of my vas symptoms so I don't welcome the cold weather, my legs go numb and I am unable to walk