I had a really good meeting with my Rheumatologist on Monday! She was pleased I had found Vasculitis UK and said that the more I know about the illness the better they will be able to treat me.
So thank you all.
I had a dexa scan and the results showed I had lost 4% since my last one. I was taking Lanzoprazole every day and she suggested I tried twice a week as they can have a minute effect. Haven't taken one since with no problems. So will see if that makes a difference. I do still take Calceos. She said it called for another scan in 3 years because it was not a drastic loss.
Still no news for nerve damage though.