I was diagnosed with WG in June and since then my treatment has been pretty much text book, prednisolone now reduced to 25 mg and cyclo about to be moved from 3wkly to 4wkly. I have also had to have i.v. steroids at most hospital visits as not been feeling much physical benefits and struggling a bit. Have now developed problems with vision and numbness and waiting for outpatient appts re these. My primary problems have been with my lungs and sinuses. However last week I had some symptoms and asked GP to check urine and as suspected it is showing blood in urine. I have to hand in another sample to be checked again tomorrow. I think that it is too early for this to be attributed to cyclo and am worried that this may be signs that kidneys now being affected. I have rheumatology appt on Tuesday for cyclo and can discuss with consultant who is always really helpful. Can anyone offer me any insight and let me know if they had same probems. Thanks for any comments
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