I have only just joined this site and would be grateful for any information that anyone can help me with as I have never met anyone with vasculitis and am having some alarming symptoms which are causing me real concern.
I started getting bruising all over my lower legs a few years ago and was told I had vasculitis caused by sjogrens/sle. The rashes/bruising has continued despite taking hydroxichloroquine and has been more of an inconvenience rather than a huge problem. However in the summer I started feeling really unwell and became covered in hives and then developed numbness in my arms and legs, I have been taking predisolone since then but the numbness continues and has spread to my face and sometimes I have it across my back. As a result of taking steroids I have ruptured my achilles tendon and with the numbness in my arms whilst being on crutches I am really struggling with mobility. My rheumatologist has referred me to a neurologist but while I am waiting for that appointment I am worrying myself sick about where this will all lead.
Has anyone else had similar Symptoms? Any information would be really appreciated.