You can now listen to Scott Smith, the creator of Ed's Lace, talk to the PSPA Podcast about the inspiration behind the fun awareness campaign.
Scott’s grandad sadly died of PSP in 2012, and the lack of awareness of the condition sparked an idea whilst studying for a Masters in Science Communication.
An idea led to an amazing campaign with worldwide reach. And then a 2022 relaunch.
Listen in to the chat with Scott to learn more about Ed’s Lace, here: anchor.fm/pspapodcast
My dad -Tom
Dystonia in the foot and ankle.
Another book on PSP
