For the first time in almost 3 years, I made the decision to accept some speaking engagements and used a local respite center. The decision was hard for me, but for my own mental health, I needed to get out and feel like me again. Caregivers guilt is real.
Within 48 hours, mom became lethargic, non-responsive In communication and wasn’t eating. I was a basket case all week, trying to communicate her needs; this was falling on deaf ears. As much as I tried to educate them on what she needs unique to this disease … no one seemed to understand.
I have returned home and I am praying that Mom will slowly come back to me. I know without a doubt her brain was overstimulated and she is exhausted. She is staring, and will smile when I ask her to. Pocketing food as I feed her, and constant reminder to chew and swallow. Her body is weak, and she is so very tired.
This week is eat, rest, eat, rest on repeat. No unnecessary stimulation… I’m not sure what else to do.
It’s amazing how 7 days away can make such a difference. Oh, my sweet Momma.