Homeopathy for PSP: Side Effects???

[pankaj911]

My mom has PSP and we've been trying alternative medicine for the last three years. We're very well aware that there is no cure for PSP yet but someone suggested homeopathy and we thought of giving it a try. Though we haven't seen any improvement in her condition yet, we think that the pace of deterioration has slowed down a bit but as nobody in my family understands medicine, we can't say for sure.

Through this forum/post, I would like to find out if there is someone who has also tried homeopathy. Are there any side effects of homeopathy? Most meds are spirit/alcohol based? Can they have any adverse effects on kidney/bladder?

Other people in my family seem fine with the homeopathic treatment but I am not fully convinced. Sometimes I think that the homeopathic doctor we're consulting is a quack. The meds are expensive and we don't know about the composition. Sometimes, they tend to give temporary relief to mom.

Please share your thoughts and/or any similar experience, if any. Thanks!

[Mick72]

Hello pankaj911, thanks for posting your message. My husband was diagnosed with PSP in September 2020. Since then he has deteriorated rapidly, now completely bedridden, totally relies on care 24/7. We had virtual video appointment with his Neurologist yesterday who told us there is nothing he can do and asked me to prepare myself for the worse. Only last week one of our relatives in India mentioned to get in touch with a homeopathic doctor there. As we are not seeing any medication helping him now, I have spoken to the homeopathic doctor and we are going to try homeopathic medication. As far as I am aware you can take the homeopathic medicine without any side effects. Even if it is not true there are side effects of Parkinson’s medication and muscle relaxants that he is taking at the moment. Homeopathic doctor assured me that we should see improvement in his symptoms in 2-4 weeks after starting to take the medicine. I will post our experience using homeopathic medication in a month. I am keeping my fingers crossed. When you say homeopathic medicine gives your mum temporary relief, what symptoms are you seeing improving?

[pankaj911 in reply to Mick72]

Thanks so much for replying to my post. We are consulting a homeopathic doctor based in Dehradun, India. I don’t know if mom’s condition is really improving with the homeopathic treatment but there have been a few good days in between - when she opened her eyes during the day, had a normal bowel movement, had less or no chills, slept well at night without getting disturbed, grunted and groaned less, and registered near-normal blood pressure, etc. We consider those our little victories and each of them counts. We would love to have more of such good days (than bad and ugly days) and really hope that homeopathic treatment results in some noticeable improvement - but then every day is different. My best wishes to you and your husband. I really hope that he gets better with homeopathy. Prayers and hugs. Take care and keep us posted.

[timbowPSP in reply to pankaj911]

THAnks for ur lovely reply, Pankaj. I Tim, male, am the sufferer! Retired from being complementary therapist a year ago. Homeopathy is quite strong in India, and probably more effective if you can back it up with some other suggestions of mine. They say that no-one ever gets better from PSP, but I am a rebel and want to change that perception! With love and light, and all things bright! Timbow

[pankaj911 in reply to timbowPSP]

Thanks for your encouraging reply, Tim! Cheers! Way to go! My best wishes to you. (Pankaj)

[timbowPSP in reply to pankaj911]

HELLO MICK! First question is: what bird is that? First glance said Ringed Plover, but no, plumage wrong, and beak too heavy!

It's a horrible diagnosis to hear first time - left me numb and the 'rebellious feeling' right away. I recognise that 'they' may be right and that everyone degenerates, but the more people that believe in the positive, the sooner will a treatment be found. Simple energy equation/exchange.

Some ppl just clam up and shut down, and others like me are nosey and talk to strangers, and get more mileage out of life. It's horses for courses!

I love my meals, but with legs going, so less exercise, I am starting to put on a bit of the heavy .... and `Xmas due soon. That' vagus- masseuse' sounds good. Plz keep me informed. Good talking to another positive person. TIMbow xx

PS (against the rules) if you like direct contact try me on (reversed): moc.liamg@2skcoclliwt

[Banta123 in reply to pankaj911]

Hi Pankaj.Im from Leicester in the UK.

My dad who is now 67 was diagnosed 2 years ago with PSP.

He has rapidly declined. My mum who is his full time carer is great with him! She is extremely positive with him just like how Tim mentioned. She is convinced that he will he get better and is improving in whatever new treatment, food, exercise or diet he tries.

He did however try homeopathy treatment from india. After about 3 weeks my dad looked awful!! His face and neck had gone really dark as if he had been sitting out in a hot country for years! But worst of all he seemed like he was on drugs, I mean he was completely out of it like all the time. He wouldn't hardly talk or move. His eyes were almost shut, so sleepy and out of it. It was horrible! My sisters and all our partners love dad and support my parents every weekend with giving mum a break, doing their shopping, takind dad out etc. We all noticed how different he was and hated seeing him like that. We quickly got him.off that treatment.

I don't know what exactly he was having and im not sure how all this stuff works but i hope we find something that does help or give some better results. If anyone finds anything then please let me know.

My mum is so positive with my dad she will not let him get into a wheelchair! Although he struggles with walking he she will encourage him to still use his own legs and strength until he completely can't anymore. She will not give him the PEG until she thinks necessary as he loves eating my mums food. Little things like this give him a sence of normality and hope! I love this about my mum, my dad mostly listens to her. I see them twice a week and my young kids sit with their grandad and do puzzles, writ numbers, words etc to keep his mind stimulated.

Keep up the good work everyone! You are doing great, don't give up!

Ranj

[pankaj911 in reply to Banta123]

Hello Ranj,Thank you for sharing. Much appreciated.

Your mom and you are doing a great job. Everyday for an hour or two, I play songs that she loves listening to. Whenever I can I talk to her, though she never responds (or rarely responds barely with a hmm). I agree that it’s the moments like these that count. I make sure that my uncles and aunts come to see her at least once every month. I am positive and believe that she will bounce back. Let’s hope that they all get better soon.

Much love and prayers.

-Pankaj

[Mick72 in reply to timbowPSP]

Dear timbowPSP, I really admire your positive outlook. I believe that you are going to prove them wrong who think there is no medication or cure for PSP. My husband hardly speaks to say how he feels or what he thinks. However I am not giving up and accept what Neurologist told I.e., accept it he is going to get worse. I told him my husband enjoys food and he eats 3 meals a day except he has sometimes difficulty swallowing fluids. In response neurologist said I will recommend tube feeding in his letter to the GP. I could not believe what he said. We are hoping to receive his homeopathic medicine next week. We are also getting vagus nerve stimulation done by a Nutritionist/ Masseuse who is going to advise us about what foods are best for him. Good luck with your alternative therapies. Take care.

[timbowPSP in reply to Mick72]

Another option (also reversed) is 860637-63770! 👍

[timbowPSP]

Hello Pankaj! I am 80 with PSP diagnosed 3 years ago. Quite slow changes so far, and am sure that is because I have been using complementary therapies since the start. That includes homeopathy (slow acting - usually but now and again rapid changes), cranial osteopathy (excellent), and acupuncture. Also exercise is important (my main one is Pilates and walking), and diet (it seems that vegetarian Mediterranean diet is best ). Seems to me that state of mind is really important so PSP stands for Please Stay Positive! I have written 3-pages of information and suggestions, and happy to send to you if you tell me your e-address. (I don't know how to add attachments here!) . Best wishes TIMbow

[pankaj911 in reply to timbowPSP]

Much appreciated, TIMbow! Thanks so much. I have inboxed you my email address. Please check your messages here.

[Baruli]

Hope the homeopathic treatment helps in some measure, Pankaj. It’s a truly horrific ailment for all involved in varying levels. I lost my father two months ago after he was diagnosed of PSP 7 years ago. Hemp extract, Ayurveda, homeopathy etc helped to a certain extent but nothing can really halt the degenerative nature of the illness. My Dad’s final days in the hospital was the stuff of nightmares as there is no concept of a hospice generally in India. Sending much love and prayers your way

[pankaj911 in reply to Baruli]

Hello Baruli, thank you for your response. I am so sorry for your loss and I know how tough it is to lose a loved one. You are right that the concept of hospice is non-existent in India. We have a full-time nurse/caregiver for mom. Thanks so much for your wishes. Much appreciated.