My Ex is giving up

[ConcernedEx]

Yesterday my ex’s sister called to say the end is upon us and she granted me permission to see my ex.

We communicated through squeezing (as much as he could squeeze) hands and eye contact with tears. I brought up episodes from our time together and we both just stared at each other ….. knowing there was always love there…..through each episode, both good and bad.

I didn’t think my heart could break more and yet broken it is….yet praying God takes this special man home where he belongs “in heaven”.

This site has helped me in countless ways.

This disease is brutal and we all know that’s true.

I wish everyone writing here and anyone effected by psp “comfort” and love.

Thank you for letting me share😥

[Trixi01]

I’m so glad you were allowed to see him and you were reminded of the love and happy times you had whilst you were together. It’s heartbreaking what this disease does to your loved ones.

Take care of yourself. Xx

[ConcernedEx in reply to Trixi01]

The sister is evil but she did reach out to let me know- so I’ll give her that. I thank you for your words.

[WifeLilyRose]

Hang on to those memories. It’s great you got to see him. My husband is now very much in the later stage of PSP, at home with 24 hour care. The hardest thing I’m finding at the moment is the constant feeling of sadness that my partner of almost 53 years is slipping away from me. And having no time frame as to how the end will be.

[ConcernedEx in reply to WifeLilyRose]

53 years….what a gift God gave you. The constant sadness, unfortunately, is the torn in our hearts.

Sometimes I prayed God would take my ex sooner and yet, now that it’s here “I’m not ready emotionally”.

❤️sending you ever lasting love and hugs. Yes, sometimes from a stranger who knows what your gut feels could help.

[Ovation1 in reply to WifeLilyRose]

I lost my husband to psp after 53 years married. My sympathies are with you and what you are going through and will go through keep strong and look after yourself x

[Caralime]

Nice for you that you got to see him, it is such a cruel & horrible disease.My husband is in late stage PSP & can only squeeze my hand as is non verbal. I talk of all the happy times we shared but it's so very hard seeing him now when you get nothing back. He is virtually locked in his body & is a shadow of his former self. Best wishes to you & your family.x

[ConcernedEx in reply to Caralime]

I’m so sorry for what you’re going through with your husband. From my little experience with sharing “happier” times….my ex enjoyed the stories.

May God continue to give you the strength to endure such heartache.

[fishponds]

Sending hugs x

[ConcernedEx in reply to fishponds]

Hugs appreciated. Thank you.

[MRSYafffle]

Sending lots of love your way. Yes hang onto the happy memories it's how we get through. Take care and be kind to yourself xx

[ConcernedEx in reply to MRSYafffle]

Thank you so very much.

[ConcernedEx in reply to MRSYafffle]

Lovely words, love kind to yourself!

So many of us forget that part of this journey.

Thank you.

[Purrlie]

I am very glad that you were able to be with your ex and share memories. It is a gift to have had this time with him now and I hope that it will be a comfort to you and him. Sending many hugs. Purrlie

[ConcernedEx in reply to Purrlie]

Very sweet of you to take your time to reach out to me. Many never understood that we broke up and remained so close, but we did.

Thank you.

[Farooqji]

Why had you left him

[ConcernedEx in reply to Farooqji]

My ex and broke up before his diagnosis for personal reasons.

But we always held love in our hearts for each other.

[Farooqji in reply to ConcernedEx]

Ok thanks

[acorneater]

I hope you have loved ones around to support you,I had nobody when my late wife died and what with covid it was very hard.Now things are better I can catch up with hugs and kisses.Take care.

[ConcernedEx in reply to acorneater]

Yes, God Bless having loved ones but COVID is returning swiftly and altering life back to being alone. Prayers for your late wife and prayers for you to find comfort and joy in. Life.