It has been such a long road. This is truly a horrible disease. Jeff fought to the bitter end. He finally went home to be at peace this past Saturday. We all said our goodbyes and he was resting peacefully with the love of hospice. It was about 3.5 years from his diagnosis. Closer to 4 years from when things starting going so very wrong.
I think he had every symptom and complication possible along the way. I am always happy to help anyone who is also on this journey with the wisdom I gained, but didn't necessarily want.
We did chose to donate his brain to research. The process was seamless and respectful. Ill let you all know in a few months what they say went wrong in that wonderful head of his.
Thank you all for being there. For your support, friendships and advice. I learned so much. Blessings to you all.