Its over: It has been such a long road. This... - PSP Association

PSP Association

7,609 members10,239 posts

Its over

Gingerw3 profile image

It has been such a long road. This is truly a horrible disease. Jeff fought to the bitter end. He finally went home to be at peace this past Saturday. We all said our goodbyes and he was resting peacefully with the love of hospice. It was about 3.5 years from his diagnosis. Closer to 4 years from when things starting going so very wrong.

I think he had every symptom and complication possible along the way. I am always happy to help anyone who is also on this journey with the wisdom I gained, but didn't necessarily want.

We did chose to donate his brain to research. The process was seamless and respectful. Ill let you all know in a few months what they say went wrong in that wonderful head of his.

Thank you all for being there. For your support, friendships and advice. I learned so much. Blessings to you all.

34 Replies

Sending big hug and much loveLots of love


My heart goes out to you and your family. I am so glad to hear that you were all able to say your goodbyes. My husband donated his brain too and it seemed to make things feel a little less a waste of his life, to feel that people could learn from it to see if there is anything that can be done in the future to help others from suffering as our loved ones did. Take care of yourself now. Big hug AliBee x

Sending gentle hugs... Granni B

Dear Ginger, Heartfelt condolences to you and your family. Sending you love and hugs. Take care. - MJ

Sending love and hugs to you and your family Think of you all, Sarah xx

I am sorry for the passing of your husband and what you all have gone through. Yes, I agree this is an awful disease as I see this everyday with the progression of this disease with my mother. My condolences and take care.

sorry for your loss.memories will get you through this difficult period .xxoo

,Maria Elena

A big hug.


Love and hugs from a fellow traveler

I’m very sorry for your loss. I hope that in the coming days, weeks and months, that you will draw strength from the lifetime of memories that you shared together. My sincere condolences to you and your family.

So very sorry for your loss x

Very sorry to hear about your husband. My heart goes out to you. My husband has been suffering for the last 2 years, first it was diagnosed as Parkinson’s but symptoms deteriorated too fast and then diagnosed as PSP. I don’t know what to expect so living each day as it comes. Take care and God bless.

Hugs, love, and light to you. So sorry for your loss and bless him for donating. Prayers for you during the healing process!

So sorry for your loss big hugs x

So very sorry for your loss.Hugs and prayers - Tim

Now look after you .he is in a better place. Sorry for your loss.

A fine man. Good to read his obituary. But too young..... You have clearly being a wonderful support to him.


I am so sorry for your loss. Sending warm hugs.

I am so very sorry for your loss. Such a long hard road to travel. I hope past, happier memories of Jeff fill your heart to help you mend in the days to come. God Bless!

So very sorry for your loss. I hope you can find some consolation and peace in knowing that your dear Jeff is no longer fighting this horrible disease. Big hugs, Purrlie

Sorry for your loss!

Dear Ginger, big hugs and much love. Elena

So sorry for your loss!

My deepest sympathy. Thank you for sharing your journey.

Deepest condolences, Ginger.

Condolences Gingerw3 on the passing of your dear husband and at such a young age. It is comforting when you are at their side to say goodbye and they leave knowing they are loved. He is at peace now, and now you must be kind to yourself and take each day as it comes.

Sending lots of love Nanny857xx

Thinking of you & your family. I think the fact that your husband wanted to donate his brain speaks volumes for the type of man he was. xxx

So sorry for your loss.

Wishing you and your family peace and love. So sorry for the loss of your husband Jeff.

completely understand and relate. may his soul rest in peace. This is such a grey area even for the medical science fraternity

So very sorry for your loss.Hugs and prayers - Tim


I read the Obit. Your husband sounds like a great guy. I'm so sorry for your loss. Another beautiful person taken so soon by this disease. Your husband is at peace now. No more PSP. Remember and treasure all the good times and happy days. And remember that you were there for him, you did your best, so be proud.

Sending love and strength to you and your family,


Sending you & your heart loads of love & hugs

So very sorry for your loss, it's such a horrible cruel disease& no treatment or cure !! It's an awful Illness & changes the person they once were . Reflect on the good times to get you through the next phase. x

You may also like...