Advice on making my mom happy inspite of her situation

[Yana_1506]

Hello, first time i write here, my dear mom have psp, and now she can barly walk , she is very upset and sad that suddenly her situation got worse ( 2 weeks ago she could walk alot better with holding me), i love my mom so much and it break my heart to see her davasteted and in pain both phisical and mental, i really dont know how to help her mentaly and phisicly and how cheer her and make her to be as happy as possible and thinking possitive, please any advice

[AnneandChris]

Dear Yana

You will find lots of help and advice here. But it would help us to know where you are in the world as there are such large variations between different countries as to what is available for people with PSP/CBD.

Take care

Anne

[Yana_1506 in reply to AnneandChris]

Thank you for answering. I am from Israel, dont know here any groups and on the sites in hebrew the information is very minimal about psp.

[LuisRodicioRodicio]

Hi Yana!

I'm sorry PSP/CBD/ etc. has entered your family.

The suggestions of my "chat" colleagues are wise and based on their different experiences. In my case they have been very helpful.

These kind of diseases manifests theyself in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the "trial and error" method, achieve a quality of life with interesting moments despite everything.

I am not a phisicyan.

During the 8,5 years in which we was living with PSP I have been collecting our own experiences, symptoms and solutions and that of other members of the chat to offer some notes as a suggestion to PSP/CBD patients and caregivers. The mentioned notes are made with good will and with the best technical criteria that I could contribute, thinking above all in the support of the caregivers

Wishing the best for you and your family and if the notes-document with our experiences and our informations are of your interest, do not hesitate to let me know to send it by the private mail of this chat.

Hug and luck.

Luis

[Yana_1506 in reply to LuisRodicioRodicio]

Thank you very much for your comment LuisRodicioRodicio! Yes, i like to read and learn the notes- documents.

[LuisRodicioRodicio in reply to Yana_1506]

Hi Yana!I am sending you the documents by internal chat.

Hug and luck.

Luis