My wife has had PSP for about 8 years, surprisingly other than falling once in awhile and having other related issues she is doing quite well.
Lately she has been like talking crazy about things that comes out of no where. It’s frustrating for me because she think’s I should know what she is talking about. Unfortunately she has had a couple of small brain bleeds from falls around a year ago.
With all that said does anyone have incidents like that with a loved one with PSP ?
My dad was cognitively perfectly fine UNTIL we started using the Scopolamine patch to control his saliva production that was leading to excessive choking. The patch worked wonderfully in doing its job, however, the side effects were beyond horrendous. Dad would randomly try to run off in the middle of the night. He'd randomly think he was in his childhood home and he wanted his mom. He'd ask for folks that have passed on, etc. We've been off the patch for about six months now but the effect has lingered. I would advise everyone to not use this patch. Not sure if this helps you but just my two cents.
Hi, your wife sounds like she is in a really good place living with PSP for 8 years. My mum has suspected PSP, her first symptoms probably started around 2.5 / 3 years ago. The consultant is eliminating other conditions before giving a definitive diagnosis for my mum. Do you mind if I ask if your wife is still mobile / ok feeding / getting dressed herself etc ? I am so worried what lies ahead if my Mums PSP is confirmed but your post has given me hope there might be plenty of quality time ahead for her.
Yes , she is mobile ,can do almost everything . Somethings are a challenge , like balance ,cooking (she loved to cook and bake ) , I I still let her try but at times I end up finishing the task do to hand coordination , hand strength is limeted putting thing's in oven. We are truly blessed by the grace of God !
Also P.t. and O.T . Play apart and important part for daily things she dose.
This out-of-context talking was the first symptom of my husband's PSP, and we would argue because he expected me to know what he was saying, and he could not grasp that his remarks made no sense to me. So, yes, I identify. This is hard to navigate without conflict. Alas, in his case, this was the first symptom of verbal-cognitive unraveling. Now, four years later, word finding has become so difficult for him that he can no longer put thoughts or sentences together, so he cannot communicate verbally. For awhile, he could get his thoughts out in writing, but eventually the words vanished in the time between getting a thought and writing it down. I don't know if this is a path you can expect to travel, but the good news is that my husband has been far less frustrated and angry about it as his cognition has declined.
You might want to have her checked for a UTI (urinary tract infection). This could possibly be causing this if this is her first time acting like this.
My wife also has PSP for about 3 years now. She is somewhat mobile (with help) but has trouble getting up, going to the bathroom or bathing, getting dressed and requires feeding help once her plate gets about half empty. She can no longer cook, clean or an of the other common things she used to do.
In the last few months she too started talking about things totally out of context. She is also losing voice control and tends to slur her words a lot making it very difficult to understand her. She can still do ok on the phone with others (short converstions) but then is totally drained after and can go through big mood swings. I am afraid that this is all living with PSP.
talking in his sleep
Diet and an eye out for PSP
Why is my Mum so tired when going out to the shops in her wheelchair being pushed by us, it can take 2 days to get over a 2 hour outing?
Refusal to acknowledge PSP
