My darling husband died on Monday, April 26. He had been admitted to hospital last Thursday because he had been having increasing swallowing issues for two weeks and had been receiving subcutaneous fluid for a week. He was to have the procedure for a PEG on Monday. He suddenly crashed Saturday afternoon and because he had made his wishes known about a DNR order he was given comfort care until he passed.
Despite Covid our son and I were allowed in hospital and one or the other of us, and mostly both of us were always with him until he died. The hospital staff was so empathetic and caring. We will always be grateful to them. We are tremendously sad, but also relieved because he is no longer struggling. It still feels unreal because this was so unexpected at this time.
My husband was definitely diagnosed with PSP only on March 26 this year. All of his other symptoms were mild, and could have been attributed to other causes, although the inability to move his eyes up and down or side to side was a huge indicator of PSP to our neuro opthamologist. The loss of his swallowing reflex and the slurring of his speech began little by little in mid-February and got worse each week until it became impossible for him to manage any food or drink by mouth on April 10th, his 73rd birthday.
Our family is so thankful that we found this community when we did. There were many suggestions that were helpful, and the messages of support were so kind.
I send you all our thanks, and courage and strength for you and your loved ones.
Purrlie
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Purrlie
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Please accept my condolences on the passing of your lovely husband. I am sure your family and friends will miss him terribly. I pray that you find comfort in memories of the life and love you shared 💔🙏
I am so sorry for your loss. Grieving is difficult so take your time get lots help and support and take care of yourself. Sending you lots of love Sarahxxx
My sincere condolences on the loss of your dear husband. Hope you find comfort in that you were by his side, he is at peace and whole again, PSP no longer has him in its evil grasp. Take care.
So sorry for you sudden unexpected loss. This disease can be so unpredictable. At least you and he both did not have to experience the worst of what this disease can bring. Hugs and Blessings to you and your son!
Dear Purrlie, I was so sorry to hear your news as it must have come as a shock to you and your family but am so glad that you were able to be with him at the end. As you say he is no longer suffering which is the biggest thing to hang on to. I am glad that the family on this forum were able to help you once you found it. Take care and look after yourself now. Love and condolences AliBee x
Thinking of you and your son at this difficult time. So glad you were able to be with your husband at the end and it was peaceful. Be kind to yourself. xxx
Very sorry to hear this dear Purrlie. Expected or not, there is always a shock when the end comes. It brings the reality closer to me .... at 79 I am aware that his may be my end also, and my choice would be to have it like your husband, with no more faffing and hassle for me or family .... just to move through into the new dimension with love, hope and joy! With love and hugs to you and ur son. Timbow
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hello I am the wife of a newly diagnosed husband joining your lovely supportive group.
