Hello everyone,
My darling husband died on Monday, April 26. He had been admitted to hospital last Thursday because he had been having increasing swallowing issues for two weeks and had been receiving subcutaneous fluid for a week. He was to have the procedure for a PEG on Monday. He suddenly crashed Saturday afternoon and because he had made his wishes known about a DNR order he was given comfort care until he passed.
Despite Covid our son and I were allowed in hospital and one or the other of us, and mostly both of us were always with him until he died. The hospital staff was so empathetic and caring. We will always be grateful to them. We are tremendously sad, but also relieved because he is no longer struggling. It still feels unreal because this was so unexpected at this time.
My husband was definitely diagnosed with PSP only on March 26 this year. All of his other symptoms were mild, and could have been attributed to other causes, although the inability to move his eyes up and down or side to side was a huge indicator of PSP to our neuro opthamologist. The loss of his swallowing reflex and the slurring of his speech began little by little in mid-February and got worse each week until it became impossible for him to manage any food or drink by mouth on April 10th, his 73rd birthday.
Our family is so thankful that we found this community when we did. There were many suggestions that were helpful, and the messages of support were so kind.
I send you all our thanks, and courage and strength for you and your loved ones.
Purrlie
hello I am the wife of a newly diagnosed husband joining your lovely supportive group.
Confused !
Hello from Indiana, USA
The end
