Watery Eyes: My wife has had PSP for about... - PSP Association

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Watery Eyes

oilman1 profile image
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My wife has had PSP for about 3 years now. It was difficult to get the right diagnosis going from allergy issues to sleep apnea to possible heart attack to pychological problems to the eventual PSP. One thing that has been common all the way through this has been the continual watering of the eyes. Have others run into this problem and are there any possible solutions? One doctor mentioned the possibility of surgically closing the tear ducts but I am afraid of possible side effects. Any ideas out there?

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oilman1 profile image
oilman1
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Hound25 profile image
Hound25

My husband has PSP fairly advanced now and his eyes have been a big problem for the last few years. The doctors say it is because PSP patients don’t blink so their eyes dry out and the body compensates by making the eyes water. We have tried many different eye drops, probably the best are the Systane Hydration UD but nothing really works for long. Now my husband always has one or both eyes covered as I think the double vision and any light really annoy him. Sadly there aren’t any real answers.

Hi oilman1!These are our experiences about.

Hug and luck.

Luis

• Dry eyes is a classic problem: drops of artificial tears to the eyes or physiological serum upon request (more often as the disease progresses). If you have problems applying the drops "Optrex spray" is an alternative. Also warm moist compresses help. Wash your hands beforehand and clean the eyelids with not irritating baby shampoo. and after use a gauze sterilized by each eye, moistened in physiological serum. It can be also an allergic problem.

To improve the lubrication of the eye we have tested "Hycosan Extra" (Sodium hyaluronate 0.2%) (Aquoral is similar) by applying it 3 times a day. It bothers a little in the first seconds after applying. Our experience has been positive and we have noticed that the internal redness of the eyelids has diminished.

Systane Hydration UD it is also recommended but nothing really works for long. (Hound25)

Consulting an ophthalmologist who has experience in PSP is recommended.

• Clarity produces "photophobia" and irritation of the internal eyelids. She wore sunglasses frequently applied artificial tear drops or saline serum. Sometimes suffers headaches and eyes pain on afternoons. We suspect that the origin is photophobia. We usually neutralize them with paracetamol.

• In the morning the eyelids may appear "stuck". To avoid it put eye ointment in at night to help lubricant the eyes. It is also possible that the eye may not stay closed all night and it dries the corneas. The ointment is 97% petroleum jelly and 3% mineral oil.

Baily2357 profile image
Baily2357

My husband suffers with watery eyes he has botox injection into his tear ducts

AJK2001 profile image
AJK2001

My Mum suffered with watery sore eyes & had her tear ducts blocked but I don't think it made much difference. What helped most was getting a referral to a cornea specialist, she could see that Mum's tear film across the surface of the eye was disrupted & so everytime she blinked it was like blinking across sandpaper. She prescribed an antibiotic which was taken something like 3 days a week for 3 weeks, reduced the number of times eye drops & gels were used (evidently over use can be as bad as under use) and suggested daily use of an eye bag, followed by cleansing of the eyelids to keep Blepharitis at bay. I wouldn't say it was perfect but things improved & Mum was obvioulsy more comfortable. it was just a shame it took years to get the referral to the cornea lady.

Rubikcuber profile image
Rubikcuber

Hi.

My mum has PSP and also suffers with watery eyes. She has been prescribed hylo-forte eye drops and vitapos cream. I'm not sure how well they work but I think they do provide a bit of relief as Mum is mentioning them less. We also have an appointment with an eye consultant (arranged via her opticians) and whilst I know that there is nothing surgically anyone can do, at least she will have an opportunity to discuss this with them.

Mum also says her vision is blurred at times and I think this is just a progression of this horrible disease.

Might be worth giving the drops and cream a try.

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