Things are moving fast...

[VivienandMe]

Mum came out of hospital after another bout of pneumonia on Friday. She left there chatting and still eating OK. In 48 hours she has changed so much. Not able to speak or move. Only able to blink a yes or no. I can't believe it. The GP is on the way and I'm awaiting a call to find out what is happening. He carer thinks that perhaps she isn't getting enough fluids and maybe we have to move to peg ASAP.

Being 3 hours away is so hard. I'm torn between jumping in the car or waiting to see what the GP says in a couple of hours. And of course it's Christmas Eve tomorrow and my children are expecting to have their presents on Christmas Day at home and maybe I won't even be there.

Sorry I know there are no answers out there but it's all I can do to just type and hope the phone will ring with some positive news.

[Dadshelper]

I understand your feelings of needing to be there but as you say it's a 3 hour drive. Wait for the GP to evaluate her, then make a decision on traveling after that. Waiting is definitely a hard thing to do but even if you were there you'd be waiting. I hope it's something relatively simple even if it means going back into the hospital for IV fluids, if dehydrated.

Good Luck

Ron

[Cazash]

Hang in there. Sadly it’s often a waiting game and as Ron said even if you’re there it’s still waiting around. At the end of the day your children will still get their Christmas presents even if you can’t manage to be there so try not to beat yourself up about it. I Do think we put too much pressure on ourselves as parents to make things perfect at Christmas especially but guess what life isn’t perfect and things happen that we can’t control Make the best of what you have .....

We lost dad this summer to PSP and would give anything to have just one more Christmas Day with him. It does put it into perspective and makes you realise life goes on.

Hang in there and here’s hoping it’s good news and a relatively simple fix for your mum

Hugs.

Caz x

[LuisRodicioRodicio]

Hi VivienandMe!

I hope and wish that it is an acute and timely episode that can be resolved relatively quickly.

By internal mail I will send our experiences after 7.5 years living with the disease. I think you can find some suggestions for the many everyday problems that this disease presents.

I join Dadshelper's suggestions.

A hug and good luck.

Luis