losing the power of speech: Hi all,as my... - PSP Association

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losing the power of speech

acorneater profile image
14 Replies

Hi all,as my wife's speech gradually gets worse I was wondering if there is an I pad type device on the market that just displays the alphabet letters that can be selected by touch.Don't know if it would work for her but I am always up for trying anything to improve things.

Acorneater.

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acorneater profile image
acorneater
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14 Replies
SewBears profile image
SewBears

The Apple store has a few apps listed under Speech Therapy but I haven’t actually tried them out yet. Please let me know if you find a good one.

My sister-in-law calls my husband once a week on FaceTime and she communicates with him quite well. It gives me a break and she is very patient with him. Hubby looks forward to her calls because they focus on childhood memories that they can both relate to and he enjoys it. I’m not sure if you have anyone who might have time to chat with your wife. When hubby is on call he seems to be at his best, he’s got his “show time” on. Of course I have to make sure that I’m there to work the iPad for him but for the most part, once the connection is working, I can leave the room. I hope that this might be an option for you?

Scottoppy profile image
Scottoppy in reply to SewBears

Our speech therapist has lent us an iPad with an app called 'Predictable' £159.00 seems a lot to pay but we will see. I willlet you know how we get on with it. First impressions are it is too complicated.

Look at the Verbally app. There is a free trial version to see if it would help. Does she see a speech therapist?

Dadshelper profile image
Dadshelper

If you do an online search for "Ipad assistive communication apps" you'll get a whole bunch. Some are free, some are not.

Ron

racinlady profile image
racinlady

I think that as speech is lost so is the ability and/or eyesight to operate anything as complicated as a keyboard. Usually someone with PSP isn't able to release a key fast enough to keep from getting multiple characters if they can even strike the correct key. Their eyesight makes seeing a keyboard quite difficult. You will need to keep it simple for her. A large laminated sheet held at eye level with large letters or pictures that she can point to will probably be more manageable for her.

Now, while you are still able to communicate is a good time to start planning for this. You can start to think of appropriate pictures that could represent her needs as you are responding to them now, for instance. I didn't do this and I wished many times that I had. No way did I think that our communication would become completely nonexistent, but that is what happened. None of this gets easier as the illness progresses.

Pat

SusieTess profile image
SusieTess in reply to racinlady

Pat...you are such a wealth of information...thank you so much for sharing....keep posting !!!

Hugs, Kathy

Aprilfool20 profile image
Aprilfool20

Like jeff166 my speech therapist recommended Verbally.Jayne

daddyt profile image
daddyt

There are several devices available. I think some on this forum might be able to recommend something. An OT is a good resource as well should you have no luck here.

Tim

Railfan profile image
Railfan

Im practicing with AAC software on my Android. Im sure there is something like that for the Apple devices.

I've also heard of people using a Ouiji board (board only) because it has letters numbers and answers for simple questions. Such as Yes/No. The benefit is that it is large.

Red1990 profile image
Red1990

Curious, has she had speech therapy? Our SLP recommended this for breath/vocal strength training:

emst150.com/

$5.00

Tttp profile image
Tttp

Sorry don’t know of any device,, I used flash card with the letters it did work for a while, then went to thumbs up or down, wish I would have recorded his voice while he could still talk.

BABALINDA profile image
BABALINDA

You can choose from Lingraphica Free Apps from the AppStore it has differents types of communication at different levels . They are very helpful.

Kimmyliz12 profile image
Kimmyliz12

Ì use a speech app on my phone and now have a tablet that works using my eyes I can do loads on it e.g. operate tv turn on light and talk it's amazing,

messier profile image
messier in reply to Kimmyliz12

That sounds amazing - what app is it?. How easy is it to learn how to use it? Mum seems to really struggle with remembering and following instructions now - is that more a CBD feature than PSP? Just working the menus on her freeview box confuses her constantly.

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