Anyone with PSP in Hyderabad, India?

[sivas]

My father was diagnosed with PSP 4 years ago. He lives in India and my mom and sister have been taking care of him. Since I live in the USA I'm not much of a help to them. They would like to connect with other PSP caretakers in the area. Please message me if you live in Hyderabad or anywhere in India. I like this website and its been very helpful in dealing with my own guilt.

[Hidden]

I have seen a few post from India on here. Hopefully someone there will see your post.

This site is very useful to understand how other also feel about dealing with someone with PSP.

[sivas in reply to Hidden]

Jeff, Thank you for responding so quickly. The people on this website are amazing. You take the time to respond right away despite the difficulty of dealing with PSP patients.

[Hidden in reply to sivas]

There is down time to be had. Not a lot. I deal with his disease and the rest of the house, cooking, shopping, cleaning, gardening etc.

Your request is so specific a lot of people may feel it isn’t appropriate to answer your request. I didn’t want you to feel no one had read the post. Lots of people have all around the world.

[Tippyleaf]

Fingers crossed you can connect there are definitely people who have posted from India previously

Love a UK based Tippy

Xx

[PSomani]

Hi . I am based out of New Delhi and happy to provide any references or inputs that your family needs.

Anshuman

[sivas in reply to PSomani]

Hi Anshuman,

Thank you for getting back to me. My father was actually diagnosed with psp at the Delhi Apollo hospital (6th doctor who finally figured out what was wrong with dad).

My father has been given a heavy dosage of Fludac (4 tablets a day) which keeps him in a zombie manner. I’ve been very concerned about this high dose that his doctor prescribed. What antidepressant is your patient being given?

Have you tried Botox for frozen jaw issue?

[PSomani in reply to sivas]

Hi. Sent you a message separately

[Hidden]

My brother is diagnosed PSP. We live in Hyderabad.

[sivas in reply to Hidden]

Xyz31, Thank you responding. My email address is [e-mail] if you want to reach out to me.