Hi everybody, mum with PSP is having trouble useing rotunda due to her stiff arms , any medication ideas? Thankyou

[Kaylewis]

Hi mum with PSP is having trouble with very stiff arms that won’t allow her to stretch out and use rotunda some days, any ideas???? Many thanks

[daffodil48]

Hi, seems to be quiet on here today so I will answer you although stiffness rigidity hasn't started yet with my hubby. I have seen people mention Baclofen which I believe is a muscle relaxant. I know there are lots of posts about this. Maybe do a search on psp for rigidity, stiffness etc. Hopefully soon someone else will come on forum with suggestions.

[Yvonneandgeorge in reply to daffodil48]

George also is not effected by stiffness, sorry can’t help . Yvonne xxxx

[Kaylewis in reply to Yvonneandgeorge]

Thankyou

[Kaylewis in reply to daffodil48]

Thankyou.

[Kevin_1]

Agreeing with Daffodil

But adding... get a physio from a neurology team if you haven't already had that service. just ask the GP to make a referral.

Exercise and movement helps a lot with PSP/CBD. My wife has regained function and pushed back stiffness just with this alone.

Hope this helps.

Best

Kevin

[Nanny857 in reply to Kevin_1]

Thanks Kevin, I will show W your reply as his back is getting stiff and this might encourage him to move a bit more.

[Kaylewis in reply to Kevin_1]

Thankyou.

[Kaylewis in reply to Kevin_1]

Thankyou.

[Kaylewis in reply to Kevin_1]

Thankyou.

[Kaylewis in reply to Kevin_1]

Thankyou all, have spoken to hospice and they are sending a physio out to show us the correct exercises to do which may help. Baclofen is no good as it will effect muscles we don’t want it to effect e.g . Swollowing. Xx

[Kevin_1 in reply to Kaylewis]

Thanks for getting back and giving info. on Baclofen.

Interesting as quite a few folk are taking it. Though they may well not have swallowing issues at the time. What you say makes sense though.

Good luck, I do so hope you get some improvement.

xx

[daffodil48]

I also heard massage, heating pad, warm water therapy if you have access to that

[Kaylewis in reply to daffodil48]

Thankyou

[LuisRodicioRodicio]

Agreeing with Daffodil and Kevin.

Hugs.

Luis

[ninalulu]

no medications , what the DR said is not true. SORRY

[Kaylewis in reply to ninalulu]

Going to doctors to ask for baclofen.

[Aprilfool20]

Hi. Kay, I been having upper body massage and it has really helped. Took a few sessions to release the tension but am able to stretch left arm in line with physio exercises, could hardly move for ache before and neck stiffness much improved.

[Kaylewis in reply to Aprilfool20]

Thankyou.