Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for February 2018

Free assistive technology

This is a post really for UK people who are attending the meet on March 6th. Would either of these pieces of assistive technology be of any help to any of our...

This is a post really for UK people who are attending the meet on March 6th. Wou...

Ratcliffe

•6 years ago

9 Replies

Final Journey

I just wanted to say thank you to you all for the support given to me. Xxx My last post explained that my Mam had made the decision to stop all medication on...

I just wanted to say thank you to you all for the support given to me. Xxx My la...

york

•6 years ago

37 Replies

HAPPY BIRTHDAY, AVB

Welp there you have it... I sent myself a birthday greetings. But hey, I'm 57 today, what the heck ! Actually this is my 2d go around with this msg..I tried...

Welp there you have it... I sent myself a birthday greetings. But hey, I'm 57 t...

abirke

•6 years ago

76 Replies

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PSP - swallowing questions

Hello...my partner has had PSP for about six years and is having more problems with swallowing. I am interested in connecting with people who are familiar with...

Hello...my partner has had PSP for about six years and is having more problems w...

PSPPsP

•6 years ago

13 Replies

Try again 're grieving

I did something sill and accidentally posted before I had finished

Baileyboo

•6 years ago

14 Replies

This grieving is strange

Hi all I am posting this as I fail to understand this empty feeling. I was told it is usual to feel numb and I totally agree

Hi all I am posting this as I fail to understand this empty feeling. I was told ...

Baileyboo

•6 years ago

24 Replies

Psp

My husband been diagnosed over year has slur words vision cataracts few more falls what to expect next?

My husband been diagnosed over year has slur words vision cataracts few more fal...

salem16

•6 years ago

3 Replies

Valentine Surprise

I missed B's roses on Valentines day morning. It amused him that I never knew that he had them hidden somewhere and produced them as if by magic. Imagine my...

I missed B's roses on Valentines day morning. It amused him that I never knew th...

Robbo1

•6 years ago

12 Replies

The PSP Luge Team!

Just for fun. I told Charles he would be perfect on the luge sled and should consider himself part of the PSP Luge Team at the Olympics. Why, because they...

Just for fun. I told Charles he would be perfect on the luge sled and should co...

Cuttercat

•6 years ago

14 Replies

Must doctors treat everything?

Having been diagnosed over 7 years ago - first with PSP, later changed to a CBD as symptoms developed- and suffering a severe stroke five years ago, my...

Having been diagnosed over 7 years ago - first with PSP, later changed to a CBD ...

Hidden

•6 years ago

15 Replies

More meet ups?

I've been thinking - despite the fact that Liz always looks worried when she sees me do that. Her eyes seem to say, "oh, not again and please don't do that."...

I've been thinking - despite the fact that Liz always looks worried when she see...

Kevin_1

•6 years ago

32 Replies

Going it Alone My fault

I have had several bouts of aspiration. One exactly a year ago that required 3 weeks in the ICU with atrib fibulation and kidney failure,They had to put me on...

I have had several bouts of aspiration. One exactly a year ago that required 3 ...

btuma6

•6 years ago

6 Replies

Dad has possible diagnosis of corticobasal syndrome.what is this?

I have joined this forum because I have just found out my elderly father has a possible diagnosis of corticobasal syndrome.I don't know if the diagnosis will...

I have joined this forum because I have just found out my elderly father has a p...

144jim

•6 years ago

14 Replies

Freezing In Motion

My husband was diagnosed with PSP just two months ago, after being diagnosed with Parkinson’s six years ago. We had suspected PSP for about six months...

My husband was diagnosed with PSP just two months ago, after being diagnosed wit...

DeDeDickson

•6 years ago

44 Replies

A plea to the PSP Assoc for an improved forum.

The PSP Assoc. has achieved amazing things for such a small organisation. They have raised the profile of PSP in the U.K. clinical world, they sponsor...

The PSP Assoc. has achieved amazing things for such a small organisation. They h...

Kevin_1

•6 years ago

23 Replies

What happened to Kevin's post?

I had a notification that Kevin had posted something about PSPA tech difficulties and it has already been deleted. What's going on? Rosemary

I had a notification that Kevin had posted something about PSPA tech difficultie...

Richanne

•6 years ago

9 Replies

Biogen/BMS Anti-Tau Phase 2 Trial Recruiting

All, there was a post a several days ago from a caregiver mentioning that their husband was participating in an Abbvie Phase 2 trial of an Anti-Tau medication...

All, there was a post a several days ago from a caregiver mentioning that their ...

Dickwin

•6 years ago

11 Replies

March 6 Consolation Prize for those who can't go!

Saw this on the CurePSP site: Free webinar on Minimizing Caregiver Fatigue by Janet Edmunson, M.Ed. (author of Finding Meaning with Charles) March 6 7:00 pm...

Saw this on the CurePSP site: Free webinar on Minimizing Caregiver Fatigue by Ja...

raincitygirl

•6 years ago

5 Replies

Dates on our posts

Was wondering if our posts we make have a date on them instead of "three months ago". Sometimes I am reading post that are "two years" old and decide it is too...

Was wondering if our posts we make have a date on them instead of "three months ...

johns65

•6 years ago

13 Replies

Acceptance...

I just saw these words and they really struck a chord. Acceptance.....So hard to accept. Our loved ones fight everyday against these evil diseases and sadly...

I just saw these words and they really struck a chord. Acceptance.....So hard to...

Spiralsparkle

•6 years ago

16 Replies

Hogwarts museum again

This message was delivered by owl post as explained here

jmoffat

•6 years ago

4 Replies

Hogwarts museum and Valentine's day

A large owl looked down from a cloudless sky, squawked twice then dropped this message

A large owl looked down from a cloudless sky, squawked twice then dropped this m...

jmoffat

•6 years ago

3 Replies

CBD Lifeline

Hi. I have been following the Care Community for sometime but have only just found this one, as I was unaware of the connection with PSP and CBD. My husband...

Hi. I have been following the Care Community for sometime but have only just fou...

AliBee1

•6 years ago

16 Replies

Pauline from Huddersfield and anyone else from Yorkshire or N.Derbyshire?

Hi Pauline, sorry, I can't find your message again. Please get in touch. Let's see how many people we can get in touch with on this site from the above areas,...

Hi Pauline, sorry, I can't find your message again. Please get in touch. Let's s...

Robbo1

•6 years ago

7 Replies

06 March 2018

I would love to be joining you but unfortunately the return flight to Belfast doesn't suit. Hopefully I will get a chance another time. Have a great...

I would love to be joining you but unfortunately the return flight to Belfast do...

Nanny857

•6 years ago

1 Reply

An unusual way to grieve.

It is now 73 days AD (After Dad). Things are moving very fast, we spotted a bungalow for Mum and due to her having extremely poor mobility with various...

It is now 73 days AD (After Dad). Things are moving very fast, we spotted a bun...

JR61

•6 years ago

18 Replies

Psp or parkinsons

Hi I am Gill and my husband has recently been diagnosed with psp he had been treat for parkinsons for the last 13 years I wondered if there was anyone else...

Hi I am Gill and my husband has recently been diagnosed with psp he had been tre...

gill1958

•6 years ago

8 Replies

A list.

My beloved is in his 5th day of choosing to go without food and hydration. Since his initial diagnosis with this Positively Sh—-y Palsy he has always known...

My beloved is in his 5th day of choosing to go without food and hydration. Since...

Finoni

•6 years ago

8 Replies

I am concerned about grieving

Hi everyone I can't understand this process! Les left me on 29 November 2017 which is just less than 3 months ago. I can't find a reason why but I am not...

Hi everyone I can't understand this process! Les left me on 29 November 2017 wh...

Baileyboo

•6 years ago

37 Replies

Dubai

I wished I could pick you all up and bring you to the lovely place so relaxing, I keep thinking about George, wishing he could enjoy this with me. Guilty...

I wished I could pick you all up and bring you to the lovely place so relaxing, ...

Yvonneandgeorge

•6 years ago

38 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2018

Free assistive technology

Final Journey

HAPPY BIRTHDAY, AVB

PSP - swallowing questions

Try again 're grieving

This grieving is strange

Psp

Valentine Surprise

The PSP Luge Team!

Must doctors treat everything?

More meet ups?

Going it Alone My fault

Dad has possible diagnosis of corticobasal syndrome.what is this?

Freezing In Motion

A plea to the PSP Assoc for an improved forum.

What happened to Kevin's post?

Biogen/BMS Anti-Tau Phase 2 Trial Recruiting

March 6 Consolation Prize for those who can't go!

Dates on our posts

Acceptance...

Hogwarts museum again

Hogwarts museum and Valentine's day

CBD Lifeline

Pauline from Huddersfield and anyone else from Yorkshire or N.Derbyshire?

06 March 2018

An unusual way to grieve.

Psp or parkinsons

A list.

I am concerned about grieving

Dubai

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive