Posts - PSP Association | HealthUnlocked

PSP Association

9,335 members • 11,389 posts

All posts for February 2018

Yet again!!

Mum has dilerium again. She was discharged from hospital 2 weeks ago. Nothing showing up on tests. GP thinks PSP gaining momentum. Is this others experience?

Mum has dilerium again. She was discharged from hospital 2 weeks ago. Nothing sh...

Gill4mum

•6 years ago

5 Replies

Death wishes

Yesterday, I sat with my dad whilst he completed his “death wishes”. He has decided he doesn’t want a peg or to be resuscitated and listed who he wanted...

Yesterday, I sat with my dad whilst he completed his “death wishes”. He has dec...

Melhukin

•6 years ago

13 Replies

So tired!

So my father in-law has PSP and is about 4 or 5 years into it. He is so impatient and while I was in the laundry room he tried to get up on his own and he...

So my father in-law has PSP and is about 4 or 5 years into it. He is so impatien...

Sglisson

•6 years ago

10 Replies

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Let's reclaim Valentine's Day!

Hi everyone, I posted this in response to Ratcliffe's post, but Anne (Heady) prompted me to post it separately. And we all know Anne knows best! So here it......

Hi everyone, I posted this in response to Ratcliffe's post, but Anne (Heady) pro...

Sawa

•6 years ago

21 Replies

Happy Valentines Day

Happy Valentine’s Day to all my dear friends. Do what you need to do to get through today.....and any other day. My dad bought and wrote a valentines card for...

Happy Valentine’s Day to all my dear friends. Do what you need to do to get thro...

Robmatlol

•6 years ago

3 Replies

My Disease

Was told by a Nurolagist that i may have C.B.D last july 2017 .Only symptoms i have is dizziness every morning till about 4.00 pm then i feel great dizziness...

Was told by a Nurolagist that i may have C.B.D last july 2017 .Only symptoms i ...

woodchopper

•6 years ago

11 Replies

Difficult Day Tomorrow

I know this is a bit of a self pity post, but tomorrow is going to be a rotten day. Not just for me, but many of us on here who are post-PSP. I've been in...

I know this is a bit of a self pity post, but tomorrow is going to be a rotten d...

Ratcliffe

•6 years ago

91 Replies

Which Mum will we get today?

Amanda and Kevin's recent post has spurred me on to come out of lurk mode and post something. My mother-in-law, Olive, was diagnosed with PSP about 6 months...

Amanda and Kevin's recent post has spurred me on to come out of lurk mode and po...

claredavieswales

•6 years ago

28 Replies

Burning mouth syndrome

I have posted before on the form about the problems my wife has with dry mouth and tingling on her tongue and gums. I never mentioned our GP said it could be...

I have posted before on the form about the problems my wife has with dry mouth a...

Evertonian

•6 years ago

4 Replies

Get together on 6th March

My dear friends, I can’t wait to meet you all on the 6th March and put faces to you all and more than that, thank you all for your support over the past three...

My dear friends, I can’t wait to meet you all on the 6th March and put faces to ...

Robmatlol

•6 years ago

9 Replies

Floor thru lifts

Hi, anyone know how to go about applying for a floor thru lifts? Is it through the local council equipment and changes to your home? Can I call social...

Hi, anyone know how to go about applying for a floor thru lifts? Is it through t...

Megabrew88

•6 years ago

20 Replies

CBD help please

Hi all my Mum has CBD and was diognosed about 3 years ago although think she has had longer until last few weeks we have been able to cope but her behaviour...

Hi all my Mum has CBD and was diognosed about 3 years ago although think she has...

Greens

•6 years ago

21 Replies

Please God, if you are listening or reading this!

My mom was diagnosed with PSP in December 2015. Since the last year things have gotten quite worse. Now, she can't walk without support and we are going to buy...

My mom was diagnosed with PSP in December 2015. Since the last year things have ...

pankaj911

•6 years ago

24 Replies

Carers know best! ?

I'd like to hear how you all find the best way to make suggestions to carers or to question what they are doing. I would hate to lose this agency who are all...

I'd like to hear how you all find the best way to make suggestions to carers or ...

Richanne

•6 years ago

11 Replies

Quick response needed if possible.

Mum has just been admitted to A&E via paramedics due to another fall. My dad has been really ill and in hospital for 9 days so have been backwards n forwards...

Mum has just been admitted to A&E via paramedics due to another fall. My dad has...

Sarah1972

•6 years ago

27 Replies

Thank you!

Thank you to all you amazing people who responded to my post absolutely exasperated! The time and thought that goes into your responses is overwhelming when I...

Thank you to all you amazing people who responded to my post absolutely exaspera...

Careenh

•6 years ago

2 Replies

Dilemma

A tidal wave of thanks to all who replied to my 'Dilemma'.

Sayer

•6 years ago

Be the first to reply

Temperature spikes

Hi Does anyone else who you care for have episodes of temperature spiking and then going back to normal? Mum hasnt been well for a number of weeks with UTi &...

Hi Does anyone else who you care for have episodes of temperature spiking and th...

Spiralsparkle

•6 years ago

24 Replies

Sign up now!

My husband is currently participating in a clinical trial in the U.S, and we are thrilled to be a part of helping to find a cure for this dreadful disease or...

My husband is currently participating in a clinical trial in the U.S, and we are...

Donnasue1

•6 years ago

36 Replies

Timings for the 6th March???

I need to book my train ticket, before I have to take out the second mortgage! What sort of time will everyone be going home? I can either get the 4.30 from...

I need to book my train ticket, before I have to take out the second mortgage! W...

Heady

•6 years ago

15 Replies

How to control choking ?

Hello, Hi I am from India and this is my first post on any e-forums related to PSP even though I have been reading a lot. My dad, 70 years in age has been...

Hello, Hi I am from India and this is my first post on any e-forums related to P...

BalajiN

•6 years ago

22 Replies

Clinical Research Study for PSP

Hello All, Is anyone out there participating in a clinical research study to assess the efficacy of the drug ABBV-8E12 in PSP? If so, I am interested in...

Hello All, Is anyone out there participating in a clinical research study to ass...

teresa1988

•6 years ago

16 Replies

Found a old posting,worth a re read

StrelleyHidden 4 years ago 25 Replies Recently on this forum, a few have mentioned how caring for their loved one with PSP is somewhat like caring for a child....

StrelleyHidden 4 years ago 25 Replies Recently on this forum, a few have mention...

Hidden

•6 years ago

9 Replies

A story about pants

Couldn’t resist sharing a little story about pants!! We have my Hubby’s brother over from USA staying for 10 days. He has been very keen to help so whilst I...

Couldn’t resist sharing a little story about pants!! We have my Hubby’s brother ...

Tippyleaf

•6 years ago

15 Replies

Frozen Shoulder

Does anyone else in this group get frozen shoulders? I got frozen shoulders last year. After a couple of months treatment, it got better. Again this year, in...

Does anyone else in this group get frozen shoulders? I got frozen shoulders last...

shobacg

•6 years ago

5 Replies

Dilemma

My wife has had several incidences of Aspirational Pneumonia and has decided, when it happens next time, against having any more treatment of any sort....

My wife has had several incidences of Aspirational Pneumonia and has decided, w...

Sayer

•6 years ago

10 Replies

Absolutely exasperated!!!😡

Hi all, some of you responded to a recent post of mine looking for advice on medication to help with mum's anxiety/howling/screaming. Thank you for all your...

Hi all, some of you responded to a recent post of mine looking for advice on med...

Careenh

•6 years ago

16 Replies

Update on Dad

Thought I would send an update on Dad. He never got to the neurologist due to having a fall on the same day. He was taken in to hospital where he remains now....

Thought I would send an update on Dad. He never got to the neurologist due to ha...

Sarah1972

•6 years ago

19 Replies

New to the sight but have been following & very helpful

My partner, Sam, was diagnosed with Parkinson's 6 years ago. After taking him to physical therapy for walking and going thru the "Big" program for gait and...

My partner, Sam, was diagnosed with Parkinson's 6 years ago. After taking him t...

Krmaier6896

•6 years ago

9 Replies

An update............

Marie asked me how I was doing ........... The above image is of my home that I had whilst living on the canals, it brings back so many good memories so I...

Marie asked me how I was doing ........... The above image is of my home that I ...

Bargiepat

•6 years ago

28 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2018

Yet again!!

Death wishes

So tired!

Let's reclaim Valentine's Day!

Happy Valentines Day

My Disease

Difficult Day Tomorrow

Which Mum will we get today?

Burning mouth syndrome

Get together on 6th March

Floor thru lifts

CBD help please

Please God, if you are listening or reading this!

Carers know best! ?

Quick response needed if possible.

Thank you!

Dilemma

Temperature spikes

Sign up now!

Timings for the 6th March???

How to control choking ?

Clinical Research Study for PSP

Found a old posting,worth a re read

A story about pants

Frozen Shoulder

Dilemma

Absolutely exasperated!!!😡

Update on Dad

New to the sight but have been following & very helpful

An update............

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive