Psp or parkinsons

[gill1958]

Hi I am Gill and my husband has recently been diagnosed with psp he had been treat for parkinsons for the last 13 years I wondered if there was anyone else with psp who could talk to me about what symptons they were diagnosed on please

[Evertonian]

My wife was diagnosed about 4 years ago with PD and with PSP in December. In her case her PD symptoms progressed quickly. Her consultant gave her a memory test that and her symptoms brought him to this conclusion. She has waterworks problems and now wears a catheter. She is fatigued. She uses a trolley to walk around the bungalow and can fall. She uses a 4 wheel walker outside but can really only walk a few yards, I have to keep hold of her to get her to the car. Her toes have curled under. She gets a terrible stiff neck and jaw. Yesterday she was told she had Lichen Planus, she has pins and needles in her mouth sometimes. Dry mouth and dry eyes.

[honjen43]

Hi Gill and welcome to this forum!

This is where you will find the answers to your questions and strong support along the journey you have begun.

While you are waiting for an immediate answer to your question, have a look at what others have said in the past. These comments can be found by searching for symptoms you see in your husband, or by reading previous posts that appear to the right of your post as a result ofyour heading 'PSP or Parkinsons'.

Each post comes as individual samples of how PSP can present itself, as it can take a different path with every person affected.

Others will be more familiar with PSP than i am. My husband was diagnosed with CBD or cortico basal degeneration, which is a little different, but still part of the area of Parkinsonism. He was also initially diagnosed with Parkinsons disease.

You have found a group of very supportive and knowledgable people here who will help you fight any problems you encounter along the way.

Hugs

Jen xxx

[Daddiesgirl82]

My father has PSP going on 5 years this August and has taken a turn for the worse in the last 2 years. He is totally dependent on us for everything he can not walk alone, he has lost periphereal vision, he has to close one eye to see, he has excess saliva and chokes, on a feeding tube, and so much more. We get some at home assistance but not much. I work full time as a teacher and have 2 kids who are very involved with after school activities. My mother has just been put in the hospital for depression and alcohol over dose. I am now alone with him and balancing everything.

[rriddle]

You might find value in this webinar:

brainsupportnetwork.org/rec...

Focus on the form on PSP called PSP-parkinsonism.

[wear1947]

Hi Giil, my sister was diagnosed the same. The doctors changed the diagnostic after intermitent pulsy of eyelids and vertical gaze also.

I wonder what type of PSP she has. Luis has published a revised table I have found in Dr. Toledo et al. paper. Toledo paper could give you a glumpsy vision of the many types of PSP.

See also contributions of raincitygirl

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Keep in touch

Wear1947

[tlovins]

Hi Gill and welcome to the forum. My dad was diagnosed with PSP in December. He was first diagnosed with a stroke 2.5 years ago. Then after a dramatic sudden decline in December a Neurologist said Parkinson’s only to change it to PSP the next day. MRI showed never had a stroke. His symptoms include; unsteady gait and frequent falls, speech and swallowing problems, choking, unable to look down or up, extreme body rigidity, urinary issues. First noticeable signs were urinary issues and unsteady gait. Best wishes to you and your hubby.

[Sayer]

Good Morning Gill

MY wife Pat died from PSP earlier this week. Our experience might help you. Take some comfort that your husband has had his condition 13 years. PSP sufferers suffer, on average, six to seven years.

Diagnose usually takes time. Often confused with Parkinsons etc. A very indicative sign is that PSP sufferers falls backward. Backward is important. Thus, and remember over time, there is:

•loss of balance

• physical weakness

•loss of driving skills.

Dropping things.

speech problems

swallowing difficulties l

incontinence.

If you think I can hep further, please get in touch. [e-mail].

Keep strong

[LuisRodicioRodicio]

Hi gill1958!

Based on medical articles I have prepared a table of symptoms for different types of PSP compared with the typical Parkinson's disease. It is only an approach that I have submit to criticism from more expert people but I believe at this moment it can bring some clarity of ideas.

The table is an xls document. that I can not send through the HealthUnlocked chat channels.

If by internal HealthUnlocked mail you send me an e-mail address I can send you the xls file with the table.

Greetings.

Luis