Acceptance...

[Spiralsparkle]

I just saw these words and they really struck a chord.

Acceptance.....So hard to accept.

Our loved ones fight everyday against these evil diseases and sadly will lose the battle.

We hold on really hard with the knowledge that we know there will come a point we have to let go and allow nature to takes it's course, the fight is done.

Then be left in the small quiet room.

[Bargiepat]

I am still fighting but know that one day I will stop fighting and will have to accept that the time has come to 'call it a day'.........

[Marie_14 in reply to Bargiepat]

Patrick

May that not be for a long time. You are a special man.

Marie x

[Spiralsparkle in reply to Bargiepat]

You are totally amazing. Keep that fight and determination on your terms.

As Marie has already written, not for a long time yet.

It is always so lovely to see your posts and from your perspective.

X

[DoreenC in reply to Bargiepat]

Keep fighting Patrick your spirit for life is amazing X

[enjoysalud in reply to Bargiepat]

Bargiepat, I get on this site daily, but still miss postings. I am hoping that you missed SIGN UP NOW! posted by Donna Sue, I believe Feb 9th, here in the USA. Her husband is predominantly PSP, but also CBD. I encourage you to read it. Perhaps the clinical trial her husband is involved in (world-wide) is not available to you, but good to know of the drug to share with your Neuro.

I do not want to give you false HOPE, but HOPE is good. Perhaps there will be a break-through before you "call it a day".

Keeping you in my prayers. Margarita from Los Angeles

[Bargiepat in reply to enjoysalud]

Thanks for the 'heads up'........ just read the topic healthunlocked.com/psp/post....

I am seeing the neuro movement specialist in March and will see if this is happening in the South Wales area.

Cheers,

Patrick.

[Marie_14]

Spiral that is so beautiful. It made me think of the night I decided to stop fighting and let G go. It was the hardest decision I have ever made but the right one for him. It has brought tears to my eyes. It's so very true.

Marie x

[Spiralsparkle in reply to Marie_14]

Massive hugs.

It made me well up to. We are still fighting but Mum's fight is leaving her.

Then the time will come as you had to, let it go and stop the fight.

[DoreenC]

So true

[Careenh]

So sad but beautiful at the same time💔💔

[raincitygirl]

Yes it is a true & lovely statement, but we arent ready for it to be true for you yet, Patrick!!

Hugs Xxx

Anne G.

[abirke]

I'm in my closet right now!

[Spiralsparkle in reply to abirke]

Massive hugs x

[Yvonneandgeorge]

So true xxxx

[sasmock]

I can so relate to that 'small quiet room' right now. We've bought my mum away for a weekend in Tenby - somewhere we used to visit when dad was with us. It's not the same now. Everything's different. Life seems to be happening to other people whilst we sit back and watch. It's a strange feeling - one of being almost unable to relate to anyone who hasn't been through this. So glad for this site! x

[raincitygirl in reply to sasmock]

I totally get that feeling..life is happening to others..as you watch.. Well put... As you say, thank goodness for the folk on this site who understand!!