sadly passed away

Sadly my only sister, 69 years old, passed away yesterday, Saturday 2.24.2018. She was diagnosed with PSP in 2015 but we family knew something was wrong before diagnosis. She passed quietly without trauma. In the last year she was mainly in a wheelchair, had swallowing concerns, vocal issues, motor skills decline. She never complained but this disease made her exhausted. However she continued to attend therapies, movies, restaurants, family outings, etc all to bring her joy! As per her request her brain was donated to the CURE PSP foundation in NYC. She will be greatly missed be so many. Thank you for letting me join this website.

[honjen43]

Hi Tina, Am so sorry for your loss!

You have not posted much but have seen your responses and understand what you have gone through.

Your sister sounds as if she was in control of her life when it was important and was able to make sensible informed decisions on her care.

You will miss her, and have conflicting emotions between loss and relief! You will know there are many here you can join with, who will help you through the dark days ahead.

Be pleased that your lovely intelligent sister has beaten PSP, and remember the wonderful person she was before it!

Come back to this site when you feel!

Hugs

Jen xxx

[NannaB]

I’m so sorry your sister had to live with this awful condition but she is now free. It’s good to hear she continued to join in activities, happy times for you to remember.

It’s interesting she donated her brain for research. My husband did in the U.K. and I received a letter to say it will be helpful for many years to come.

It’s comfort to me to know he is still helping to find a cure. I hope it’s a comfort to you to know your sister is doing the same.

Sending you a big hug.

XxxX

[Heady]

I am sorry to hear that your sister has passed away. May she rest in peace, finally free from this evil disease.

Sending big hu and much love

Lots of love

Anne

[Yvonneandgeorge]

Hi Tina sorry to hear about your loss, at least she doesn’t have to suffer anymore, bloody awful illness xxxxx

[LynnO]

I'm so very sorry for your loss. I'm glad she could still do things that gave her some joy. That I'm sure, was a blessing for the both of you.

LynnO

[Kevin_1]

Hi Tina

Thank you for coming here and telling us.

Your only Sister. I am so sorry.

Its probably been a long struggle for you all. At least she has found a release from her suffering.

I wish you healing and hope you have folk around you.

Condolences

Kevin

[Zeberdee]

Such a sad time for you. My condolences. Jxx

[enjoysalud]

I am sorry for your loss, and applaud your sister and you for having her brain donated to CURE PSP. That is a major regret of mine. I think the more of us who do that, the quicker we will reach answers and solutions.

[fothergilla in reply to enjoysalud]

Yes. I wish I could of done that as well. Is there more information on the site on hoe to do this? You have to make so many decisions when someone dies, it is too late by then and my Fathers death was was so fast I wasn’t expecting it.

[Pentland]

Hi Tina. It is so sad to lose your sister. I am sure you will miss her greatly. Leaving her brain tissue is a wonderful legacy and I am sure you are very proud of her. I wish you the strength to cope with the days ahead.

Love Margaret

[PUTLAND]

Hi Tina so sorry for your loss of your only sister big hugs and remember good times xxx.

[Katiebow]

Dear Tina, I'm sorry to hear that you have lost your sister to this awful disease. I pleased that she engaged in life despite her decline, something my husband chooses not to do unfortunately. Her brain donation will help in moving forward to understanding and maybe at some point halt the progression of PSP.

Sending much love

Kate xxx

[AngelineAmy]

Sorry for your loss.

[connc]

I am so sorry for the loss of your sister.

[doglington]

Sad news, Tina.

I am so sorry you have lost your sister but she is now free and you have many memories to hold on to.

love from Jean x

[raincitygirl]

Dear Tina, I'm so sorry for your loss - I hadn't realized the end was this close

Hugs and solace to you: I love my sisters very dearly and the loss of either of them would be deeply painful for me, so my condolences are sincere.

XXX

Anne G.

[Tippyleaf]

So sorry for your loss. I hope you will gain comfort in the times ahead to know that by donating her brain she may help others suffering from this horrible disease in the future.

Be gentle on yourself

Love Tippy