Ive just spent 11 days in northwick park hospital with hubby ger. He had aspiràtion pneumonia which didnt respond to 3 different types of antibiotic, the third being the strongest they had for that particular type of infection. After a phonecall at 6am yesterday from NPH saying ger had a distressing night with high doses of oxygen and temperature spikes, the whole family came in and after discussions with consultant and palliative care nurse who said they could do no more as ger wasnt responding to anything, we elected to bring him home. Within 5 hours there was oxygen in the house, we had all his meds and transport, and came home. CHC carers reinstated and his care started. We can do oramorph, ibuprofen, paracetamols but not meds for secretions. We call the DN to do that. No syringe driver yet. It will go in when ger becomes more agitated.
Family all here and taking turns to sit with ger while I rest. God bless us all and give us the strength to give ger the care and attention that he needs. Also God bless each and every one of you currently doing this job and those of you who have already gone through what we are going through now.