Ive just spent 11 days in northwick park hospital with hubby ger. He had aspiràtion pneumonia which didnt respond to 3 different types of antibiotic, the third being the strongest they had for that particular type of infection. After a phonecall at 6am yesterday from NPH saying ger had a distressing night with high doses of oxygen and temperature spikes, the whole family came in and after discussions with consultant and palliative care nurse who said they could do no more as ger wasnt responding to anything, we elected to bring him home. Within 5 hours there was oxygen in the house, we had all his meds and transport, and came home. CHC carers reinstated and his care started. We can do oramorph, ibuprofen, paracetamols but not meds for secretions. We call the DN to do that. No syringe driver yet. It will go in when ger becomes more agitated.
Family all here and taking turns to sit with ger while I rest. God bless us all and give us the strength to give ger the care and attention that he needs. Also God bless each and every one of you currently doing this job and those of you who have already gone through what we are going through now.
Marie
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I'm sorry to hear your story, but pleased to hear that ger is at home, which is always good. You make sure you look after yourself, but also make sure you spend as much time as you can with ger.
Marie, I've just been through it, as you know. It feels better to allow him to go rather than have more suffering. Its hard and my thoughts are with you all.
Oh Marie... You are doing everything you can . It's so beautiful that the whole family came in to help you with the decisions inevitable to this disease. Ger is a lucky man and obviously a good dad to have his children wiht him at this time in his life.
Marie I am so sorry that another of us has to face this. I am glad that Ger is there with you though. There is nothing that can make this easy for you. Sadly we all go through it but I know you wouldn't want Ger to suffer. He can have something for secretions if he is distressed. Certainly G did. It was called Glycoperonate. I think they had to get it via the Hospice though.
Take care of yourself and just be there as you always have been. Thinking of you and sending you hugs and much love.
Thank you marie. Yes they have given us something, via DN for secretions. Glycopyrronium. I imagine they're all similar. We just call when we think he needs it.
So pleased that ger is home with you and family with full care in place. Thinking of you both on this journey. Take care of yourself. Love to you all. Jxx
No place like home, so much better than a hospital setting when they aren't able to help his situation. You are lucky to have a loving family around you and Ger. sending love to you all.
Hi Marie, make the most of this precious time. Let's others do the caring for Ger, you just concentrate on being his wife again. It's all he needs now. Hold him tight and tell him you love him. Hope everything is peaceful and calm.
Thank you anne. We're all doing the best we can for him. I've told all family and friends that the door is open if they wish to see him. I'm a firm believer in visiting people before they die if possible rather than regrets after.
Thinking of you and your family. Your story is so much like my Mum's. Wishing the end comes peacefully and you all take comfort in supporting Ger to the very end. Amanda.
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actually all those letters, would work....ACB...C for Carol
Geoff is coming home 
Support & care at home v nursing home
Considering Nursing home for husband with PSP.
