So unfair: This life is so unfair p.s.p. is... - PSP Association

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So unfair

darell profile image
9 Replies

This life is so unfair p.s.p. is so cruel. After being told he would not survive and after 4 weeks in hospital suffering from pneumonia my poor father was discharged last Thursday. We were so happy to have him back home. Due to the fact he was nil by mouth for ten days he had lost a considerable amount of weight and was very weak but we planned to feed him up and get his strength back up. On Sunday evening his breathing became laboured and his temperature rose . He was again admitted to hospital suffering once again from pneumonia. This cruel disease has again taken away our little pleasure of having him home. Doctors not sure if he will survive this time but said that last time so who knows? Horrible to see him getting weaker and weaker. When does this torture end for him and for us ? Feel like I am riding an emotional roller coaster just now.

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darell profile image
darell
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9 Replies
Heady profile image
Heady

Sending big hug and much love.

Lots of love

Anne

ssdw1958 profile image
ssdw1958

I read your note and I want you to know I am so sorry for your pain. My heart goes out to you and your family.

Sandra

Careenh profile image
Careenh

It's like being in a nightmare that you can't wake up from😢 sending much love your way. Xx

JantheNana profile image
JantheNana in reply to Careenh

So True!

Cuttercat profile image
Cuttercat

Keeping you in my thoughts. Charles keeps rallying, up and down, up and down.

I truly understand.

Cuttercat

EricaE profile image
EricaE

Thinking of you, wishing I could say or do something to make it better, can only send love. x

JAYNIE62 profile image
JAYNIE62

So sorry to hear you are going through this heartache; a similar journey to mine a couple of years ago. Much love

Birdman34265 profile image
Birdman34265

You are right about PSP being so cruel watching your love one slowly slipping away from you, and you can't stop it. All I can say is be strong and do your best for them, take time out for 5 minutes in a quiet room.refresh yourself ,love and hope to you, Peter

A big hug and much love.

Luis

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