The PSP Chronicles

The PSP Chronicles

I know sometime ago I was asked for a link to my journal/blog. My apologies... I don't think or remember getting around to do so. I think I might have it here... not really sure though.

It's be one year to the day that I began to keep a journal detailing my journey with PSP. Thanks go to Marci... my late PSW and my dear friend Mike Sweeney who also suffers with PSP and FTD for the push and inspiration. It was always my intention to post my journal for family and friends as a blog format, which took me some three months later in February, to get motivated and figure out how to do it. This is the story of my journey and how it began and continues to this day. I know that some may have already read it from the beginning and others have not. I have myself

read them over again and rediscovered (besides type o's lol.) things that I have already forgotten. So if you're inclined to read on, allow yourself some time. The posts are not as lengthy after I caught up my handwritten notes... I think (:

Tim Brown published an article on WordPress.

February 4 ·

WordPress

·

The Beginning Nov 03/15 I've given it some thought in the past, but this is the first time in nearly two years after my diagnosis of Progressive Supranuclear Palsy - PSP, that I've actually sat down and taken a few minutes to begin my story, which I will call The PSP Chronicles. My story, as difficult as it is to tell might be a little unsettling for some... [ 787 more words. ]

wordpressco900.wordpress.com/…/04/the-psp-chronicles

4 Replies

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  • Thanks, Tim. I look forward to reading it all. Having a window into the experience of the person with psp is something I am deeply grateful for. Peace, Ec

  • Just found your daily life story. It is very moving and has made me wonder what my husband thinks of. He cries a lot and is very sad not to be at home. You are at home and you are doing well all things considered. Sorry you had that fall though. However you seem a fighter. Love to you and thank you for the insight you have given. It is really helpful. Will read anything else you wrote before although it might take me time. Worth it though. Do people know about this? I found you by accident! Maybe because I am new on this site?

    Marie_14

  • It's be one year to the day that I began to keep a journal detailing my journey with PSP. Thanks go to Marci... my late PSW and my dear friend Mike Sweeney who also suffers with PSP and FTD for the push and inspiration. It was always my intention to post my journal for family and friends as a blog format, which took me some three months later in February, to get motivated and figure out how to do it. This is the story of my journey and how it began and continues to this day. I know that some may have already read it from the beginning and others have not. I have myself

    read them over again and rediscovered (besides type o's lol.) things that I have already forgotten. So if you're inclined to read on, allow yourself some time. The posts are not as lengthy after I caught up my handwritten notes... I think (:

    Tim Brown published an article on WordPress.

    February 4 ·

    WordPress

    ·

    The Beginning Nov 03/15 I've given it some thought in the past, but this is the first time in nearly two years after my diagnosis of Progressive Supranuclear Pa...

    See More

    The PSP Chronicles

    The Beginning Nov 03/15 I’ve given it some thought in the past, but this is the first time in nearly two years after my diagnosis of Progressive Supranuclear Palsy – PSP, that I’v…

    WORDPRESS

    Hi Marie_14... I've been publishing my journal/blog on Wordpress (which is a public domain) and Facebook for my family and friends that are scattered about. If you follow the link or even scroll down to the bottom of the post you can click on "previous" and you will eventually end up at the beginning of my posted PSP journey dated Nov 03/15. It will take some time, as there are some 50+ posts. I'm sorry to hear that your husband is not at home, that must be difficult. I'm told that with PSP it can go either way... crying or laughing at inappropriate times, I myself have not laughed in over three years... I'd take that over crying any day.

  • It's be one year to the day that I began to keep a journal detailing my journey with PSP. Thanks go to Marci... my late PSW and my dear friend Mike Sweeney who also suffers with PSP and FTD for the push and inspiration. It was always my intention to post my journal for family and friends as a blog format, which took me some three months later in February, to get motivated and figure out how to do it. This is the story of my journey and how it began and continues to this day. I know that some may have already read it from the beginning and others have not. I have myself

    read them over again and rediscovered (besides type o's lol.) things that I have already forgotten. So if you're inclined to read on, allow yourself some time. The posts are not as lengthy after I caught up my handwritten notes... I think (:

    Tim Brown published an article on WordPress.

    February 4 ·

    WordPress

    ·

    The Beginning Nov 03/15 I've given it some thought in the past, but this is the first time in nearly two years after my diagnosis of Progressive Supranuclear Pa...

    See More

    The PSP Chronicles

    The Beginning Nov 03/15 I’ve given it some thought in the past, but this is the first time in nearly two years after my diagnosis of Progressive Supranuclear Palsy – PSP, that I’v…

    WORDPRESS

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