Vitamin supplements : Was just wondering if... - PSP Association

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Vitamin supplements

allotmentartist profile image
7 Replies

Was just wondering if I should get some vitamin s for my husband he is on siminet a low dose and pain killers but is doing well at the moment , do the vitamins will help if so any idea of the best sort for psp we have relied on a good diet up till now but will try anything if it will give him a better quality of life x x

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allotmentartist
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Christine47 profile image
Christine47

I have my husband (dx 4ys ago) on a very specific diet and supplement regimen. I am posting this because he said a new addition is something he actually feels helps. And he said I should post this though I thought it was too soon! He has been using Rhodiola rosea for only a few weeks but feels his balance, cognition, vision, speech, swallowing are better. I know this is anecdotal and may be just hope in a jar. We are still working on dosage. My reference is Drs. Richard Brown and Patricia Gerbarg. I will keep you posted as to progress,

allotmentartist profile image
allotmentartist in reply toChristine47

Thank you christine 47 will look it up I think hope in a jar is what we are all after , along with a good helping of positivity ,

Christine47 profile image
Christine47 in reply toallotmentartist

I failed to mention that although my husband thinks it is helping with double vision, I don't see that his eye movement has been helped yet. He does move his eyes left to right and down. Up is the challenge. I am still hoping this will make a difference.

allotmentartist profile image
allotmentartist

That is the symptommyhubby has most is sorered rimmed eyes he is using false tears ointment which is helpinga lot so far ,he never mentions double vision though x

DenB profile image
DenB

My husband was recommended to have daily dose of vitamin D.

I also take the same now too.

Dx

My husband has been on 400 mg. Co-Enzyme Q-10 for 15 years after we attended a meeting where a gentleman in late stage PD said he had been helped tremendously with a high dose of Q-10. My husband's neurologist was doubtful but said it can't hurt him when I mentioned giving it to him all those years ago but just give him 400 mg. 15 years later he is still walking and the disease has progressed very slowly. Don't really know if it was the Q-10. His blurried eyes have been helped by Systane.

allotmentartist profile image
allotmentartist

Thank you so much I am exploring all possibilities at the moment still doing my research at the moment, got some multi vitamins from boots for the short term cant do any harm x

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