Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2016

Freds 68 today

He wanted to go away for his birthday, so we are in Great Yarmouth for a few days, we have a sea view from our room, but I don't think I captured that in the...

He wanted to go away for his birthday, so we are in Great Yarmouth for a few da...

•8 years ago

Not long 😣

So we wer told 2 weeks ago by doctor dad had weeks not months left. And yesterday a pallative consultant came to see dad. Lovely man. He says 1 week but days...

So we wer told 2 weeks ago by doctor dad had weeks not months left. And yesterda...

•8 years ago

Ben is home after 12 weeks in hospital. The fun begins

Ben eventually discharged yesterday yand I had the first carer in today, a lovely Spanish lady who's father has PSP. Unfortunately she won't be the regular as...

Ben eventually discharged yesterday yand I had the first carer in today, a lovel...

•8 years ago

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what can i do for my mom?

hi, at first, i do not speak english as my native language. i live in south korea. so, i'm hopeful for your understanding. my mom is suffered gait...

hi, at first, i do not speak english as my native language. i live in south kore...

•8 years ago

New to posting, would like input about new diagnosis

Hello all. I'm TRB and my wife is J. I've been quietly observing this site for about a year. While reviewing stories, I've found the people active on this...

Hello all. I'm TRB and my wife is J. I've been quietly observing this site for ...

•8 years ago

Downhill or not?

Hi All, I have not been very active on the posts these last 3 months.. My sister is really going downhill.. she forgets certain things and then fights about...

Hi All, I have not been very active on the posts these last 3 months.. My sister...

•8 years ago

Here we are...once more ( hopefully).

In ER with hubby and looks like yet another UTI run rampart through his system. Thought it was beginning of end. He could not put any weight on his legs the...

In ER with hubby and looks like yet another UTI run rampart through his system. ...

•8 years ago

CBD memory loss?

Mum is in nursing home at the moment in 4 week placement. She keeps telling me she has not been showered (mum likes one everyday). So when I ask the nurse they...

Mum is in nursing home at the moment in 4 week placement. She keeps telling me s...

•8 years ago

Thought it was too good to be true!

Well I don't know quite what to say, I was busy getting everything ready for Keith coming home on Monday evening when the phone rang, it was the nursing home,...

Well I don't know quite what to say, I was busy getting everything ready for Kei...

•8 years ago

A new me!!!

Well for the time being! I have lasted all afternoon and evening. S is in bed, I hope safely and will sleep all night. We have just got back from a very...

Well for the time being! I have lasted all afternoon and evening. S is in bed, ...

•8 years ago

Just been diagnosed

dad was diagnosed 2wks ago but we've been told he has had it for 2 years. We've been told he is advanced mid stage. His eyes only move side to side and he has...

dad was diagnosed 2wks ago but we've been told he has had it for 2 years. We've...

•8 years ago

Dad is uncontrollable..too adamant

Have been following all ur posts lately. When i compare my dads condition to ur loved ones suffering from PSP i wonder if its the same or not. My dad doesnt...

Have been following all ur posts lately. When i compare my dads condition to ur ...

•8 years ago

Question about toileting slings

I am asking a question to anyone out there that is using a toileting sling for transfers onto a camode etc. The question is.....was the sling provided by the...

I am asking a question to anyone out there that is using a toileting sling for t...

•8 years ago

Respite question

As you all know, I am often on the edge, although my husband, I guess only mid stage, I don't mean to be a no coper, but what with loosing Mum and Dad so...

As you all know, I am often on the edge, although my husband, I guess only mid s...

•8 years ago

Last day of respite!

Hi everyone, Well this is my last day of near normality, Keith is coming home tomorrow from his two weeks of respite! He was a bit unsettled for the first...

Hi everyone, Well this is my last day of near normality, Keith is coming home to...

•8 years ago

What health care teams are responsible for PSP sufferers?

For those of you in the UK. Does anyone know where PSP sits with health care teams? Is it under the mental health teams or physical health teams? What social...

For those of you in the UK. Does anyone know where PSP sits with health care tea...

•8 years ago

Dad newly diagnosed with PSP

Hi, After a very long road we just found out yesterday my dad has PSP. We haven't even had the meeting with the consultant yet so all I know about it is what...

Hi, After a very long road we just found out yesterday my dad has PSP. We haven'...

•8 years ago

Newbie - from pads to conveen

I am a very fit and active 84 year male; went through the grades of pads, thought there must be a better way, and bought Conveen sheaths and bags while waiting...

I am a very fit and active 84 year male; went through the grades of pads, though...

•8 years ago

Power of attorney

Advice needed please. Mum has agreed we need to get this done as she can't write anymore and speech us getting really slurred. What type of power of attorney...

Advice needed please. Mum has agreed we need to get this done as she can't writ...

•8 years ago

Were you turned down for Continuing Health Care?

Sorry things are piecemeal here at the moment. I am coming across very good bits of law and regulations and, in time I will get them organised. Just walk on by...

Sorry things are piecemeal here at the moment. I am coming across very good bits...

•8 years ago

For everyone

Hello all, Someone recently told me about this product and that it could help Parkinson's patients in their early stages.. We just started using it on my...

Hello all, Someone recently told me about this product and that it could help Pa...

•8 years ago

Not Well.

J has been coughing all day and he is very phlemmy he has been on the sofa with a blanket and now at 5pm he has gone to bed feeling hot and achey. GP visited...

J has been coughing all day and he is very phlemmy he has been on the sofa with ...

•8 years ago

Do you have split NHS and Social Services Funding?

I read that it is quite common that people are being ofered support packages where the Nursing side is funded under Continuing Health Care and the 'Social...

I read that it is quite common that people are being ofered support packages whe...

•8 years ago

Is it possible dad doesnt know this is the end ??

I have read they do know. But yesterday a doctor came out. She told us dad has weeks not months. He doesnt talk anymore or eat and has been in bed for 2 weeks....

I have read they do know. But yesterday a doctor came out. She told us dad has w...

•8 years ago

PSP carers you are champions

My wife of 38 years is now in hospice wasting away, no substance food or liquid, just keeping her lips wet,trouble is her heart and blood pressure are strong,...

My wife of 38 years is now in hospice wasting away, no substance food or liquid,...

•8 years ago

AARP Swallowing Webcast

Attached is a link to some information on swallowing. Although it is directed to PD patients, you may find some tips you can use. I hope the link works. If...

Attached is a link to some information on swallowing. Although it is directed t...

•8 years ago

Chc appeal

Hi everyone I thought I would share my fight to try and get Chc for mum Last October we had a dst done by Chc the outcome was mum would get 40 percent of her...

Hi everyone I thought I would share my fight to try and get Chc for mum Last Oct...

•8 years ago

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